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Topic: Keratoconus
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sajeev  2628
15-03-2004 08:11 PM (GMT)
Hi John,
        please copy my last post on to the new form because it has newer and more info. on PRK

Thanks
Jane Webb  2629
15-03-2004 08:59 PM (GMT)
Robert

I'm glad to hear your comments on problems with stitches so I know what to look out for. I have a running suture in my eye and on my last visit about 6 weeks ago, the consultant had to pull the stitches along as they were uneven and gave distorted vision - not painful at the time, but v. uncomfortable once the numbing drops had worn off.

I have been told to reduce the anti-rejection drops from 4 times a day to none until my next appointment which is this coming Wednesday. My sight hasn't improved at all since the stitch pulling episode but my eye does feel slightly itchy. I'm frightened to use the drops that I often have to use for my other eye as I do tend to suffer from conjuctivitis from time to time. I think I will mention the itchy eye and whether it's okay to use these drops which can be very soothing.

Jane

< replied-to message removed by QT >
sajeev  2630
16-03-2004 10:22 PM (GMT)
Hello John,

Do you know why the Keratoconus group web-site cannot be opened, I had to search on the web to find this message board, I hope all is well.

Regards

Sajeev
John Smith  2631
16-03-2004 11:50 PM (GMT)
Hi Sajeev,

Unfortunately, you seem to be experiencing the curse of the internet - the "DNS black hole".

In the final act of launching the new forums, we have now taken control of our own domain, and the internet domain name system is transferring the domain name from one machine to another.

Unfortunately, to spread the change around every computer on the internet can take up to 48 hours, during which there can be the odd problem when some computers you talk to have a different idea of the address to others.

The "Black hole" is a fairly rare occurrence nowadays though, and it should resolve itself for you sometime soon.

John
umbilica@umbilical.demon.co.uk (Rosemary F. Johnson)  2632
17-03-2004 12:01 AM (GMT)
An update on the registration/bus pass saga as per my earlier
message.

I had a phone call this afternoon from a very apologetic woman
in the council social services department, who'd had my
complaint passed on to her via my local councillor. And was
ringing to apologise for me having been pissed about by one of
the department's staff (who she said was "new" and hadn't
learned all the job yet, ha!), and that I was quite right and
shouldn't have had to do that, but only needed to go to the
One-Stop Shop and renew the pass with none of the messing about.

So, if anyone else has had a remotely similar experience with a
council making a dog's dinner out of trying to renew a Freedom
Pass when you're already on their register, give them what-for!

Rosemary

--
Rosemary F. Johnson
John Smith (Webmaster)  2633
17-03-2004 01:20 AM (GMT)
*********** NOTE ************

This old quicktopic forum is about to be turned off. You should now post messages to the "General Discussion Forum" of the new discussion board.

Enter the new forum by clicking on "Discussion" on the home page at the main web site: http://www.keratoconus-group.org.uk/

If you are having problems, the new forum is also available at http://kcforum.roundel.net/ for a short while; and you can continue to post messages here - they will be copied to the new forum.


If for some technical reason, you cannot get to the new forums, please let john@roundel.net know; in the meantime, you can continue to post in the old quicktopic forum for a few days, and the messages will be copied to the new place.
sajeev  2634
17-03-2004 05:13 PM (GMT)
Thanks John,
            This is probably not te right time to ask this question (because of the message board changes),but I will ask it anyway. What I wanted to know was if it was possible to have laser teatment afte a graft, so that it can be smoothed out To avoid the use of contact lenses after the graft has been done(there should be enough thickness for it ?)

    You guys might be interested in the following web-site http://keratoconus.com This sight has some interesting facts about new options.

Take Care and keep you head up.
Andrew MacLean  2635
17-03-2004 05:38 PM (GMT)
Um, hello

I can't reach the kc group. I saw John's mail to Sajeev and wonedered how long this "black hole" was going to last?

Andrew

On 17 Mar 2004, at 17:13, QT - sajeev wrote:

>
< replied-to message removed by QT >
Anna MASON  2636
17-03-2004 07:00 PM (GMT)
Sajeev,
My brother had a graft followed by Laser treatment and has very good vision.
John Smith (Webmaster)  2637
17-03-2004 07:31 PM (GMT)
The "black hole" appears to have ended. I myself was slightly affected by it, and a tiny configuration error was hidden from me.

Please let me know if you can't access the group's website at http://www.keratoconus-group.org.uk/ or the new discussion board.

Regards,

John
sajeev  2638
18-03-2004 12:21 AM (GMT)
Hi Anna,
        Your post was very interesting. Can you tell us more, please, about your brother having laser treatment after he had his graft. Can you tell us the following:-

1) Was it his idea or did his eye care specialist want to do it ?

2) Did he do it privately or was it done on the NHS (and which hospital) ?

3 How long has he had the graft for and how long after that did he have the laser treatment.

4) What type of laser treatment was it (Lasik or PRK) ?

5) How good is his vision now (does he wear any specticals at all) ?

Sorry for all these quetions but I am on a learning curve due to your very interesting reply message.

Regards

Sajeev

P.S. GREAT NEW MESSAGE BOARD, WELL DONE JOHN !!!
sajeev  2639
18-03-2004 12:31 AM (GMT)
Hi John,
        The URL http://keratoconus.com (entered in a previous post)can not be opened on the new forum, it can be opened on the old one (If there is anymore more future anomalies like this I will e-mail you to keep the new forum clutter free!)

Regards

Sajeev
John Smith (Webmaster)  2640
18-03-2004 01:02 AM (GMT)
Thanks for the comments Sajeev. It seems that having an inadvertant space in the URL stops it from being a URL. Problem corrected.
John Smith (Webmaster)  2641
18-03-2004 01:04 AM (GMT)
******************** NOTE *********************

Reports of group members not being able to get
to the new forums have now dried up; and there
shouln't be any problems in accessing it.

Please visit the group's home page at
http://www.keratoconus-group.org.uk/
to visit the new forums.

Posting to this Quicktopic will be stopped in the
next couple of days.

Thanks,

John
************************************************
Andrew MacLean  2642
18-03-2004 09:04 AM (GMT)
To those who will not be transferring to the new site, farewell.

to the rest, see you over there!

Andrew
On 17 Mar 2004, at 17:13, QT - sajeev wrote:

>
< replied-to message removed by QT >
sajeev  2643
18-03-2004 03:06 PM (GMT)
I could not post a message on the new board, so I will post it here!

What I wanted to know is, who is the most famous Uk celebrity with Keratoconus who would like to help the Uk Keratoconus charity. So that to create more awareness and publicity for the charity and our condition.

Please come forward, your fellow KC-ers need you !!!

Take Care
Sajeev
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