I dont seem to get messages anymoreto my email account why is this ?
Also does anyone know if torric lenses are suitable for keratoconus
and if i dont wear glasses regularly and think i can see perfectly fine is there any reason for me to get contact lenses ???
Im 23 and not keen on the whole contact lense idea. I was hoping i could maybe wait till im middleaged when the condition wont be getting any worse

I will not be accessing my emails until 04/05/04 , for urgent matters please contact the service centre on 0800 154 234 Regards, Aimee.

Hi Paul,

The KC Discussion Page has been up-dated and moved - you need to access it through the KC Group Website now - www.keratoconus-group.org.uk. You will need to register under the Discussion Forum and then set yourself up so that you receive the digests advising you when new messages have been posted.

I expect you wondered where everyone had gone!

Good luck! :-) SUE

Paul said:
  I dont seem to get messages anymoreto my email account why is
  this ?

I think they've all moved over to a new discussion board, Paul,
that mainly works as aweb site. Can you go to
www.keratoconus-group.org.uk and look for it there?

  
  Also does anyone know if torric lenses are suitable for
  keratoconus

I've never heard of them, I'm afraid, so don't know.

  
  and if i dont wear glasses regularly and think i can see
  perfectly fine is there any reason for me to get contact lenses ???
  
If your vision is adequate for your needs, then I don't see why
you should have to wear any correction. But please do be sure
that you really can see as well as you need to - for example,
check regularly that your eyesight meets the legal standard if
you drive, and f it doesn't, don't drive till you've got the
glasses/contacts to make it so.

Good luck.

Rosemary

--
Rosemary F. Johnson

to Paul
don't be worried by all the details about lenses surgery etc Paul, if yu can see well then I would say Not For You!
The kc site has a lot of members with more severe problems, and, in my experience of support groups, it's the people with more difficulties that are searching for more help therefore are more vocal!
perhaps we should start a new topic 'young people with kerataoconus' to share issues - not me, you, Im well past young!

Dear all,

I hope you are well and not finding the brighter weather and the photophobia too much of a pain.

I wondered if anyone has any idea how those of us with Keratoconus and/or Corneal Grafts will fare if the notion of Iris scan identification is seriously introduced? Presumably the view of the Iris is altered by the disease of by the graft, or minor scar tissue. Perhaps we may need updated Iris scan images on our passports, driving licences or any other form of ID which the government decides we must have.

Keep well.

Hi Freddy

I didn't know this bulletin board was still active! Perhaps I was the only one to get your message, if so let me direct you to the new (and very active) bulletin board:

www.keratoconus-group.org.uk

Yours aye

Andrew

On 3 May 2004, at 18:08, QT - Freddy wrote:

>
>
Andrew MacLean
St Andrew's Church, Port Glasgow
http://homepage.mac.com/standrews.pg/index.html
< replied-to message removed by QT >

Cheers, I forgot!

< replied-to message removed by QT >

Freddy said:
  I wondered if anyone has any idea how those of us with
  Keratoconus and/or Corneal Grafts will fare if the notion of
  Iris scan identification is seriously introduced? Presumably
  the view of the Iris is altered by the disease of by the graft, or minor scar tissue.

I don't think KC per se will affect the iris image. It's
possible that after a graft a new image may prove more reliable, though it shouldn't change the iris patterns themselves.

What does concern me, though, is that apparently part of the
process is to shine a red light in your eyes, so it can check
that the pupil contracts in the light (because a "fake" trying
to beat the system wouldn't - so anyone with a false "glass
eye" will immediately trigger all the alarms!). And that might
be a problem for someone with severe light sensitivity.
  
Though what's more worrying at the moment is the prospect of
having to have one's photo taken on arrival - no doubt
flashbulbs popping all over the place and airports becoming a
no-go area (sigh!)

  
Rosemary

--
Rosemary F. Johnson

Hello Rosemary

it's been a while! did you not make the move to the new site?

I just wanted to put on record, for anyone who happens to pick up the odd bottle on the shore, that I share your worries about the new personal identifyers.

This is a real surprise! I did not know that this old site was still working.

Andrew

On 3 May 2004, at 21:12, QT - umbilica@umbilical.demon.co.uk (Rosemary F. Johnson) wrote:

>
>
Andrew MacLean
St Andrew's Church, Port Glasgow
http://homepage.mac.com/standrews.pg/index.html
< replied-to message removed by QT >

Andrew said:
  Hello Rosemary
  
  it's been a while! did you not make the move to the new site?
  
Oh, I'll gt round to getting over there and getting stuck in
some time! I've been rather busy, not to mention totally
stressed out recently with some new tenants in the flat above me who play music with a loud thudding bass at all hours - it's
been like living inside a drum, because the thud-thud-thud comes straight through the ceiling. It's been driving me mad, not to
mention giving me a semi-perpetual
throbbing-headache-about-to-turn-into-a-migraine, chest pains
(the never-ending beat is like having a heart pacemaker going at the wrong speed - it jsut goes straight through you!) .....
plus a few other things going on, so the new discussion page
hasn't yet made it to the top of the To Do list.

Will get there some day....

Rosemary

--
Rosemary F. Johnson

I can only sympathize about your neighbours. There is something inescapable about this kind of nuisance.

Good to know you're still out there!

Yours aye

Andrew
On 4 May 2004, at 18:04, QT - umbilica@umbilical.demon.co.uk (Rosemary F. Johnson) wrote:

>
>
Andrew MacLean
St Andrew's Church, Port Glasgow
http://homepage.mac.com/standrews.pg/index.html
< replied-to message removed by QT >

Hello all,

Can I please publish a quick reminder that this Quicktopic is now closed. Many people won't be logging in here to read the messages, and we really want everyone to be able to read and contribute.

For those who are worried about the accessibility of the new forums, don't worry. The new system can also send emails out, and you can post to the forums by email too. If anyone has any problems in using the web interface to set themselves up initially, just let me know - send an email to john@roundel.net - and I'll do that bit for you.

For any new visitors reading this, please head over to the group's web site at http://www.keratoconus-group.org.uk/ and click on "Discussion Group" to visit the new forums.

Thanks,

John

To Ken Pullun with referance to our conversation i would like you to call me with the details on the specialist that does \the intacs operation and is there anyone out there who has had intacs fitted for kerataconus. If so wasit sucessful ?

I am now on leave from Monday 11th October and will return on Monday 18th October, for urgent matters please contact Richard Benton on 01977 591084. or the service centre on 0800 587 8235. Regards, Aimee.

Anyone know perfect keratoconus lense by World Vision?