Discussions

Welcome to our discussion board sponsored by the Partners In Health Family Advisory Council at Community Bridges. You are welcome to post ideas and questions here. Remember that you can "subscribe" to this board to receive email messages when new information is posted. Thank you for visiting this site.

Welcome to all of the Partner's in Health families and visitors. The Family Council hopes that you will find this discussion board helpful. Please feel free to post your questions and concerns. This venue is for you to find suggestions to questions that we all face on a daily basis as we live life with children with chronic health conditions.

If you are the first person to post a question the Family Council will have a gift for you.

Thank you for joining us.

Paula Nash, Family Council Chair.

I would just like to say a big THANK YOU for giving parents another way of communicating with others! Being able to ask questions and express our concerns via your Forum/Discussion I think, will make it a lot easier to find support from other parents and people that live and/or take care of children with special needs and/or chronic health issues. I am looking forward to meeting, discussing with and hopefully supporting parents like myself! Partners In Health is a wonderful program filled with very caring people. I don't really have a question in particular, I just wanted to say Hello to you all, and Thanks again :)
~Lucy Murayda.

Hi, Lucy and to all the other parents! For some time, I have been discussing with Janice Boudreau the idea of forming an in-person parent support group. If needed, child care could be provided while we meet, perhaps once each month. Would anyone be interested in this? Personally, I would love to connect with other parents of kids with chronic health issues so that we could support, teach and learn from one another, as well as form new friendships. If you are interested, please post what days and times would work best so that we can work on forming such a group.
Thanks,
Stacey Sweet

YES! would love to! As time is so hard with the little ones.. other than school days! I could do Tuesday at 6:30 on, and every other Fridays (starting with next Feb. 13th, 09). My little one has been ill 12 days now, so just hoping this will be it for the Winter! And snow would be ok, as I think I can make it to Comm. Bridges :)
Hi All and Stacy.
Thanks so much - sounds great!
Lucy

Hi
Please check the What's new portion of the Website to see our fundraising calender!

Hi
I have a list of the winners of the raffle I will be posting them daily now.

May 1st Susan Gannett Plymouth NH NH Musuem of History
May 2nd Jennifer Rand 5 McCoffee gift certificates
May 3rd Jennifer Rand $25 Gift Certificate to Olive Branch
May 4th John Malley Hooksett 2 Tickets to the Manchester Millrats
May 5th Leslie Lampman 2 Tickets to Smitty's
May 6th Daniel Kontoes $25 Gift Certificate to Macdonalds
May 7th Suzette Stanton Sears Portrait Collection
May 8th Howard Gloddy Northfield Framed sketch by Sara
May 9th Larry Mcphail Belmont Nascar Gift Basket
May 10th Brian Huckins $25 gift certificate to Dunkin D
May 11th Brian Huckins Family Pass to NH Musuem of History
May 12th Aaron Boudreau Manchester Tickets to Charlies Angels Dinner
May 13th Bob Etheridge Baby Quilt Made by Aaliyah
May 14th Jessie Gannett Plymouth $25 gift certificate to Mr. Gs
May 15th Nancy St Laurant Chichester $25 gift certificate to Shaker
May 16th Mike Amicangio Derry Boutwell Bowling Passes
May 17th Jamie Malley 5 Mac donald's coffees
May 18th Doris Ballard Concord $25 gift Circle Rest Chichester
May 19th Donna Burbank Franklin $25 Gift Certificate Tilton Agway
May 20th Angela Joyce Franklin 1 month curves membership Tilton
May 21st Sara Arndt Manchester $25 gift certificate Long Horns
May 22 Kara Hinck Bow 2 hour weaving lesson
May 23rd Cheryl Knight Laconia Bday party at Boutwells
May 24th Nancy St. Laurent $25 gift certificate Tilton House
May 25th Katie Yavlinsky Slot Machine
May 26 Kathy Deacon Family Pass to NH Musuem of History
May 27th Katherin Haubrich $25 beefside

Look daily for the winners!!! Thank you all for your support of PIH

Hello
The raffle is finally over!!!! Thank you goes to all who helped make it a success.

1. May 29 Andy Nash Pembroke NH Free Hair cut at Studio 73 Franklin NH
2. May 30th Doris Ballard Gunstock Gift Pack
and Finally the grand prize

3. May 31 st Deb Fournier Tom Brady shirt

Edited by author 10-10-2009 10:29 AM


**This post regards compound medications, mainly "Actigal"**

First of all, I want to express my COMPLETE frustration with the state after receiving an email detailing the situation that is now presently going on regarding compound medications. There was an 800 number left at the bottom of the email and when I attempted to call it SEVERAL times, it rang and rang and rang and rang... about 20 times then hung up. So the next step was to call all the pharmacies that were mentioned by others who supposedly filled compounds and who supposedly still took medicaid. Please keep in mind, this information is dated in June 2009. I'm SURE it has changed since considering the pharmacies are now only being compensated $1.75 to make such compounds.

After calling the list of pharmacies below, here's some interesting facts I thought you should know... first, the list of pharmacies is getting smaller and smaller, (back in June 2009).


Hannaford in Concord does NOT do compound meds
 
Rite Aid on N State St. does SOME compounds, but NOT Actigal, But DOES take Medicaid (as of June 09).
 
Target, does SOME compound meds, but does NOT do Actigal and DOES, at this time, take Medicaid. (6/09)
 
Rite Aid on South St. does SOME compounds, But NOT Actigal and does NOT take Medicaid patients since they stopped paying for the time involved for making the compound.

The ONLY CVS in NH, and I mean only (I called them all) that makes Actigal (a compound) is in Bedford NH. BUT,they do NOT take Medicaid. In my case they don't have a contract with my insurance company so therefore I would be stuck with the entire bill, costing over $120 for a 30 day supply.
 
See the trickling effect that's going on? This was in June, shortly after Medicaid stopped paying the reimbursement fees to make compounded medications.

Thank you Sherry I would really love others to respond to this and their experiences. I was speaking with a local welfare director who told me that it is not always possible for local welfare to assist with these medications. Any medications that are in need of being funded on a regular basis can present a problem. Also some welfare directors will deny based on the fact that the"state" is denying