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Topic: Hypermobility
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Susan SlaglePerson was signed in when posted  17
12-04-2007 12:56 AM ET (US)
2nd Review
A Personal Insight On: What It Means To Be Double-Jointed
 http://www.intelihealth.com/IH/ihtIH?d=dmt...4479|~r,WSIHW000|~b,*|
By: Susan Slagle

What It Means to Be Double Jointed is a website article hosted by Intelihealth and written by Robert H. Shmerling, M.D. The purpose behind the website is to educate the public in regards to Hypermobility by giving the explanations of such topics as:

•An example of what a person with Hypermobility can do – someone who can bend from their waste and touch the palm of their hands to the floor.
•A definition of Hypermobility – a person who is able to bend their ligaments and tendons further than the average persons.
•The conditions associated with Hypermobility – Marfan’s Syndrome and Ehlers-Danlos syndrome
•The effect(s) the condition could have on a person – joint pain, muscle pain, fibromyalgia, osteoarthritis and back pain.
•And the Bottom Line – what to get tested for if the condition runs in your family.

The website relates back to Anatomy through the ligaments, tendons and bones. In this case, the ligaments and tendons of an individual have more elasticity, which give more movement to the bones. The condition could be in all joints and ligaments within the body, or just a few. However, as a person ages the joints/ligaments affected seem to loose their flexibility and by the age of 75, most who are hypermobile do not have the range of flexibility they had when they were in their 20’s.
 
The pros and cons I find on the website are: Pro, the “flow”, it is well written and easy to understand. And it contains plenty of information on Hypermobility, a lot of details and descriptions are in the short paragraphs. I could not find any cons, when I thought I had one I went back and reread and the topic was covered.
Michelle Cronin  16
12-03-2007 09:16 PM ET (US)
On your website review, i couldn't agree with you more that it is easier and more comfortable getting information on a 1st hand patient. I do think you website review was well written and contained a lot of good information and al requirements.

I did not see your second website review.
Susan  15
12-03-2007 07:16 PM ET (US)
Thank you for your comments on my review. Your third website was my favorite. In your review at the time I posted this, in my opinion you might have added more on who actually makes up the "authors" of the website material. I didn't find a new review of large and small site. Your choice of subject "Journey...Hypermobility was really interesting.
Gina kenyonPerson was signed in when posted  14
12-03-2007 05:36 PM ET (US)
I only see one review posted, it was a great review it has all components required. its easy read and follow.
Leah Walters  13
12-03-2007 12:33 PM ET (US)
Missing: I don't see that you reviewed 2 websites. I see your large review, but I don't see a smaller website being reviewed.

Great job on your review, I think your review was easily read and understood. I really liked your examples of individuals with Hyper mobility Syndrome that have "stretchiness" in their connective tissue. I guess I don't have Hyper mobility Syndrome, because there is no way I am getting my foot behind my head.

The only area for improvement that I would suggest is to add a little more info on how your topic relates to A&P. I know in regards to connective tissue, but you may want to add a little more detail.
Noriko Hirata  12
11-27-2007 05:42 PM ET (US)
I really like your review! everything you wrote was very clearly, and actually it made me look at the website again. I think that you only need to put your signature.
Also I think that you need one more review.
Susan SlaglePerson was signed in when posted  11
11-19-2007 02:15 AM ET (US)
Edited by author 11-19-2007 02:21 AM
An Intriguing Journey Into the Hyper mobility Syndrome Association
http://www.hypermobility.org/index.php
Brought to you by: Susan A. Slagle

The Hyper Mobility Syndrome Association’s website is a charitable organization maintained by members who are afflicted with the condition and have created this website in order to help others understand and cope with HMS. In my opinion, this makes me feel more comfortable knowing the information and advice given is coming from people who are dealing with the condition and are now providing assistance, support, and guidance through personal knowledge and experience.

The aim of the website is to help an individual gain a better understanding of Hyper Mobility Syndrome by giving a decent description of what the condition is (larger range of flexibility in the joints) and what it covers (i.e. mainly in the joints, muscles, tendons, and ligaments). Other areas covered are the diagnosis via the Brighton Score, which will help determine if hyper mobility is present and/or if another condition may be the culprit. Under Pain, there is an overview of the different symptoms and options, tips, and ideas for pain management. Another area of the website reaches out to others through communication with message boards, information on local groups and national events, a diary, and a photo album to share with others, so a person does not have to feel they are going through Hyper mobility Syndrome or one of its afflictions alone. Living with HMS provides information on different aids and equipment, occupational therapy, tips on keeping fit, and a database of useful tips covering everything from clothing to recipes that help make everyday living easier. Last but not least, there is a section for fundraising ideas to help support this website continue to educate and support all who are afflicted by Hyper mobility Syndrome.

Hyper mobility Syndrome’s relevance to anatomy can be found in relation to the joints that it afflicts. Joints are made up of ligaments and tendons also known as connective tissues. A person who has Hyper Mobility Syndrome has connective tissues with more “stretchiness” in said joints, making them more “flexible”. An example would be someone who can touch their thumb to the inside of their forearm, or a person who can put their foot behind their head. The physiological relevance of the website is based on why a person has Hyper Mobility Syndrome, why the connective tissues are so flexible, what genes are associated with it, and how a person adapts to the condition.

Lastly, in my opinion the two best features are: the information given in the “Lifestyle Tips” section (http://www.hypermobility.org/tipsearch.php). I feel that anyone dealing with Hyper Mobility Syndrome would find this area very interesting given the ideas it has for even the simplest things that could be an every day struggle, i.e. housework or personal care. The other area of interest is the “Community Forums” (http://www.hypermobility.org/forums.php)area for the simple fact of discussing the condition with others and maybe getting up to date information or being able to ask questions on various topics that the website may not have covered. Let’s face it, there is always someone out there who has a question that may have looked the entire site over, but may not have any or all of the answer they are seeking. Although, this site is very useful and has a lot of information, the only local groups (http://www.hypermobility.org/local.php) are in the UK. Other than that, I did not have another complaint.
Larry Frolich  10
11-08-2007 08:58 PM ET (US)
Sue, be sure you tell us WHY you think each website has been posted.
LF
Larry Frolich  9
11-08-2007 08:58 PM ET (US)
sue, fascinating topic and interesting websites. I think any one of these technical articles could be a minor website...a single page to review. I'm not sure which would be a good major website. The MedicineNet article does give more of a general overview. Did you see this non-profit organization?
http://www.hypermobility.org/

This seems like it would be a great major website for the topic. Thanks for your peer feedback,
LF
http://www.hypermobility.org/

LF
Choose topic: 10 points
Find four websites: 20 points
Peer reviews: 10 points
Leah Walters  8
11-06-2007 07:56 AM ET (US)
The first rheumatology website was a great article on your topic.
The second rheumatology website had a lot of information but was a little hard to navigate.
The third website was the most informative and very easy to navigate.
The forth website was also informative and fairly easy to navigate.
Michelle Cronin  7
11-06-2007 02:22 AM ET (US)
1. I think your 1st website was good. Not very long but good. I think I could use a better description at what your topic is about. I hope that the info is beneficial though and I find your other sites to give me a good in depth detail of your topic that I can understand.

2. Second Website didn’t work for me. Maybe something’s wrong with the link I hope.

3. Your third website was good. Very informative and descriptive. It seems like a great site and shows a lot of information about the overall issues of your topic.

4. I thought your 4th website was good but short. I think although it was short I got a very good idea on your topic and certain things to look out for.
Gina kenyonPerson was signed in when posted  6
11-06-2007 12:18 AM ET (US)
1. the oxford journal on rhematology was informative on possible disavantages to having hyper mobility joints, but was not very well presented and was hard to read .

2. the article on taking " double jointedness serousily was informitive on the diagnosis but did not offer any other resource links to reference.

3. the pt journals highlighted the possible symptoms of the diease, plus gave varios treaments available to treat the disorder making this site use ful to patient with the disorder rather than informing the massives of the disorder like the previos sites.

4. medicinet.com presented general information, symptons of the disorder and possible treatments of the disorder in a user friendly fashion; but were very vauge on all three topics.
Susan Slagle  5
11-05-2007 01:11 PM ET (US)
Edited by author 11-05-2007 01:12 PM
So sorry guys,

the website addy for the second website (InteliHealth is:

http://www.intelihealth.com/IH/ihtIH?d=dmt...4479|~r,WSIHW000|~b,*|

I copied the Oxford Journals website and posted it twice
katetate  4
11-03-2007 08:12 PM ET (US)
Hypermobility
http://rheumatology.oxfordjournals.org/cgi/content/full/40/5/485 - Hypermobility or HMS stands for double-jointedness – very interesting website of info. I liked the listed references. No downside found.
http://rheumatology.oxfordjournals.org/cgi ...? - Good source of information for subject. Website ok.
http://www.ptjournal.org/cgi/content/full/79/6/591 -My favorite website of the four-lots of detail and pathology, very reputable. Website good. No worst features.
http://www.medicinenet.com/hypermobility syndrome/article.htm - Interesting –good info, easy to read ; advertising is present and innocuous- references seem good.
Noriko HirataPerson was signed in when posted  3
11-02-2007 09:52 PM ET (US)
The second one did not work for me.
The PT Journals are very informative and intersting. This website really helped me understand hypermobility.
Sue  2
10-23-2007 02:22 AM ET (US)
Website: Oxford Journals
URL:http://rheumatology.oxfordjournals.org/cgi/content/full/40/5/485
Article:Time to take hypermobility seriously (in adults and children)
Author: R. Grahame
Website that explains how Hypermobility was misdiagnosed, and gives a more recent detailed diagnosis of the condition backed not only by the author but by three other professionals who practice in the same field.

Website: InteliHealth
URL: http://rheumatology.oxfordjournals.org/cgi...?d=dmtHMSContent485
Article: What It Means To Be 'Double-Jointed'
Author: Robert H. Shmerling, M.D.
This website gives lots of information in regards to Hypermobility, what it is exactly, the diseases or disorders Hypermobilty may be a precusor of, and the precautions a person needs to take if they are afflicted with Hypermobility.

Website: PT Journals
URL:http://www.ptjournal.org/cgi/content/full/79/6/591
Article: Hypermobility Syndrome
Author: Leslie N Russek
Website that goes into great detail in regards to Hypermobility. The introduction covers various conditions associated with the syndrome, prevalence of the condition (ratio of women to men), diagnosis, a very interesting clinical presentation that details how Hypermobilty affects different age groups, Pathophysiology, Treatments, and future research.

Website: MedicineNet
URL: http://www.medicinenet.com/hypermobility_syndrome/article.htm
Article: Hypermobility Syndrome (Joint Hypermobility Syndrome)
Author: William C. Shiel Jr., MD, FACP, FACR
Website article detailing Hypermobility, what it is, the diseases that could be associated with it, what the symptoms and signs are, and how it can be treated.
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