QuickTopic (SM) free message boards QuickTopic (SM) free message boards
Skip to Messages
  Sign In to access your topic list  |New Topic |My Topics|Profile
Upgrade to Pro   Customize, show pictures, add an intro, and more:   QuickTopic Pro...and check out QuickThreadSM
Topic: Spina Bifida
Views: 156, Unique: 87 
Subscribers: 0
What's
this?
Printer-Friendly Page
Subscribe to get & post, or stop messages by email Subscribe
About these ads
Who | When
Messagessort recent-bottom   
Post a new message
 
Brian Lawler  12
12-03-2007 07:28 PM ET (US)
lots of info in these reviews. all bases are covered. i feel they could have been summarized more- you know leave more for the imagination. very informative however which is fine.
caroline hartley  11
12-01-2007 10:48 PM ET (US)
http://www.sbaa.org/site/c.gpILKXOEJqG/b.2...Real_Stories_01.htm
This was again a great review. It contained everything required. I agree that personal stories are very touching and I enjoy reading them. I liked that you included that there may not be preventable. My friend blames herself somewhat for her daughter’s disease. Good review and great topic! Caroline Hartley
caroline hartley  10
12-01-2007 10:38 PM ET (US)
http://www.ninds.nih.gov/disorders/spina_b...il_spina_bifida.htm
You did a great review! I felt like it contained everything required. I also found it very informative. I have a friend whose 13 year old has Spina Bifida and almost all the included complications too. It gave me great insight. Good job.
Caroline Hartley
Shiori TamakiPerson was signed in when posted  9
12-01-2007 04:50 PM ET (US)
Your review is great! I think you read and understood fully about this website, and you knew the points of each site. What I liked in her review is she focused on each website with different point of view. Therefore, I could know that one is for giving hope to patients, and anoter is for academic knowledge.
Stacie SoloPerson was signed in when posted  8
11-17-2007 10:24 AM ET (US)
http://www.sbaa.org/site/c.gpILKXOEJqG/b.2...Real_Stories_01.htm
This website is posted by the Spina Bifida Association but contains 10 different personal stories from real people living with Spina Bifida either thru their children or having it themselves. This website is awesome and shows you that there is hope and people deal with this disease everyday and for most of them it doesn’t slow them down.
  Like I said in the previous paragraph this website is posted by the Spina Bifida Association but contains real stories of people living with the disease. I believe this website has been posted to give people hope. Maybe it’s for people who live with the disease everyday or maybe for people who just found out that their child has this disease. Actually after reading the stories contained in this website I think it is for everyone because I was uplifted by reading the strength that these people have. This website really just covers daily living and how people cope in various ways.
 Once again this website relates back to anatomy and physiology because spina bifida is a neural tube defect. The disease affects the spinal cord to varying degrees as well as varying locations on the spine. Being a real stories website this one doesn’t go into much detail on the disease itself, but goes into how people live with it when they have the disease. Some people require wheelchairs and walkers while some use braces or nothing at all.
 I really like this website because of the hope you feel by reading these stories. These are real people who are strong and courageous and struggle daily with activities that most of us don’t think twice about. This website made me stop and realize how much I take for granted that my daughter and myself are healthy. I have so much to be grateful for yet a lot of times we forget how much harder and more painful life can be, yet these people live with it every day and manage to stay positive. Coming up with a negative point for this website is impossible for me. I appreciate the fact that some folks are brave enough and open enough to share their daily struggles with people like us. If I had to I would say to put more disease processes in their articles, but I actually think we should leave that for the doctors and researchers and just let individuals tell their stories how they want to tell their stories.
Stacie Solo
Stacie SoloPerson was signed in when posted  7
11-15-2007 12:34 PM ET (US)
http://www.ninds.nih.gov/disorders/spina_b...il_spina_bifida.htm
This website is posted by ‘National Institute of Neurological Disorders and Stroke’. This is a very good website because it contains the facts about Spina Bifida.
 This is a very good website that is posted by the National Institute of Neurological Disorders and Stroke which is a component of the National Institute of Health which is formed within the Federal Government . I believe they are posting this website to inform the public about Spina Bifida, what it is, what it causes, and measures people can take to try and reduce the occurence of the disease. This website also goes into the relationship of having Spina Bifida along with chiari II which is associated with hydrocephalus.
 This website relates back to anatomy and physiology because spina bifida is a neural tube defect. There are four different stages of spina bifida and they all have different affects. In general spina bifida is a defect in the spine where sometimes the spine is exposed. This causes damage to the nerves below the spot where the spinal cord is exposed or malformed. This means that depending on the position of the defect affects how much nerve damage there is. There is nothing to cure this disease and its not even to clear if its preventable. The website does go on to say that a diet high in folic acid also known as folate is very beneficial in lowering the cases of spina bifida.
 There are some procedures that doctors are doing in utero as far as performing surgery on fetus to limit the damage to the nerves. The website goes on to say that this is an experimental surgery that has a lot of risks for both the fetus and the mother. Also it says that it does not cure spina bifida it can only reduce some of the damage that is caused by the spinal cord malformation.
 I also learned that children with spina bifida, depending on how high the injury is can live very active and normal lives. Some people are never even diagnosed with the disease, especially if the have the occulta spina bifida, which means hidden form.
 I liked this website because it is very to the point. It really just states the facts that are known about spina bifida as far as what it is, where it is located, what it causes, and some possible preventative methods for woman of child bearing age. On the flip side if it wasn’t something you wanted to know about it would be very dry reading for someone who had no interest in the disease. I also liked this website because at the end of it there are some lists of organizations that can provide you with more information regarding spina bifida. http://www.sbaa.org/site/c.liKWL7PLLrF/b.2...ida_Association.htm Here is one of the links to another organization. One more negative point about this website is the lack of visuals. I believe when you can see pictures of what you are reading about it helps you to have a better understanding of what you are reading.

Stacie Solo
Larry FrolichPerson was signed in when posted  6
11-07-2007 12:25 AM ET (US)
Stacie, interesting topic and websites. Be sure you are complete in telling who is posting each webdsite and why, especially for your reviews.

I think you will want to review the Real Stories website as your lesser or minor review. Then, you should probably do NINDS or mayo clinic for your major website...don't review Wikipedia article...it's itneresting, but not really a website devoted to this topic,
LF

Thanks for peer feedback.
Choose topic: 10 points
Find four websites: 20 points
Peer reviews: 10 points
Shiori Tamaki  5
11-06-2007 02:14 AM ET (US)
http://www.ninds.nih.gov/disorders/spina_b...il_spina_bifida.htm Lots of info with good links but skimps on visual stimulants
http://en.wikipedia.org/wiki/Spina_bifida I love wikipedia- this site has good info as well as pictures and links.
http://www.mayoclinic.com/health/spina-bifida/DS00417 very brief but to the point. not many relavent links.
http://www.sbaa.org/site/c.gpILKXOEJqG/b.2...Real_Stories_01.htm nice to know there are support groups out there- good picture and story links.
Shiori Tamaki  4
11-05-2007 10:39 PM ET (US)
http://www.ninds.nih.gov/disorders/spina_b...il_spina_bifida.htm
There is lots of helpful information, which can make readers understand fully.
http://en.wikipedia.org/wiki/Spina_bifida
As you said, this website has exactly “a cut and dry definition”, and most terms that I don’t know are highlighted and defined in next page. However, I’m not sure that we can trust this information.
http://www.mayoclinic.com/health/spina-bifida/DS00417
As always, mayo clinic’s website has good information and details. Also I liked that there is an anatomical picture, and it was really helpful to understand.
 http://www.sbaa.org/site/c.gpILKXOEJqG/b.2...Real_Stories_01.htm
Because Patients suffer physically and psychologically, this website is really good for patients. This website heals patients’ hearts by cheering.
Caroline HartleyPerson was signed in when posted  3
11-05-2007 12:50 AM ET (US)
http://www.ninds.nih.gov/disorders/spina_b...il_spina_bifida.htm

This was a great website. I found it very informative and interesting. I like visuals, I would have liked to seen some kind of information.
http://en.wikipedia.org/wiki/Spina_bifida
This also was a great website. More information and description. It also had a couple of visuals which I like. There was nothing I didn’t like about this website.
http://www.mayoclinic.com/health/spina-bifida/DS00417/DSECTION=9
This was also a great website. Lots of information, good visuals. I didn’t care for the navigation of this site. It wasn’t hard, just a lot of clicking around.
http://www.sbaa.org/site/c.gpILKXOEJqG/b.2...7/Real_Story_04.htm
After reading the other websites, this was good to read. I also have a friend whose 13 yr. old daughter has Spina Bifida. She has had many of the complications that accompany this disease. I really learned a lot reading these sites. Thanks!
Stacie Solo  2
10-23-2007 01:27 AM ET (US)
http://www.ninds.nih.gov/disorders/spina_b...il_spina_bifida.htm

I chose this website because it is from the National Institute of Neurological disorders. This website goes into what Spina Bifida is exactly and the different forms.

http://en.wikipedia.org/wiki/Spina_bifida

I chose this website because it is an encyclopedia and gives a cut and dry definition of what Spina Bifida is. This website also refers to the fact that it is a birth defect involving the neural tube.

http://www.mayoclinic.com/health/spina-bifida/DS00417

I chose this website because it is from the Mayo clinic and I find their information to be very reliable. They do a lot of research. You can navigate through this website and find out everything about Spina Bifida from signs and symptoms all the way to coping skills.

http://www.sbaa.org/site/c.gpILKXOEJqG/b.2...Real_Stories_01.htm

I chose this website because it gives you personal stories of people who have children that have Spina Bifida. This website shows how the children are just like any other children. It also goes into to how families cope with this disorder.
Stacie SoloPerson was signed in when posted  1
10-04-2007 01:00 AM ET (US)
I am choosing this topic because I don't really understand spina bifida and what causes it. This is related to Anatomy and Physiology because it occurs in a developing embryo.
RSS link What's this?
QuickTopicSM message boards
Over 200,000 topics served
Learn more Frequently asked questions  Acknowledgements
What they're saying about QuickTopic
 Questions, comments, or suggestions? Contact Us
Read our use policy before beginning. We value your privacy; please read our privacy statement.
Copyright ©1999-2008 Internicity Inc. All rights reserved.