TO: Victoria Fisher
FROM: Celia Lyon-Dannison

I found the nhlbi.gov website to be an incredible resource for this topic. It was easy to navigate and very comprehensive in scope. It also provided links that were valuable to someone researching this topic. I would be hard pressed to list anything negative regarding this website.

The Medline Plus website also had a nice layout, offered comprehensive information and had good links, especially for support. It was user friendly and I don’t have any negative comments pertaining to this site.

At first glance, I wasn’t blown away by the childrenwebMD/lung transplant website. It was specific only to lung transplant (which was concise provided that was all the information you were seeking) and didn’t give any background information pertaining to CF. As I browsed the site, I found a great deal of information pertaining to children’s health and development and at the top of the home page, a great drop down menu for adult health information. There were no links specific to CF. However when I typed in cystic fibrosis in the search box, I received 230 results, ranging from drug results/trials to a nice overview of information to managing CF. There was a lot of great information, provided someone was well versed in navigating web sites.

Even though I found the Children’s Hospital home page limited in information specific to CF, overall I really liked the set up. Looking at this home page from a parent’s perspective, it had some really great information. You could find a specialist (with a drop down menu for numerous medical conditions), you could take a virtual tour of the facility, family accommodations, how to prepare your child for a visit etc. For physicians, there was a link for referring a patient. Even though it was limited to the topic at hand, it was very broad in preparing for a stay or visit. Parents can easily get overwhelmed when their child is in a hospital setting and this site does a nice job in alleviating some of that anxiety.

Victoria, interesting topic and nice websites which you do a great job of describing. The Boston Chidlren's hospital page could be a good minor website. Medline is part of NIH--resource clearinghouse-- and you also have their info pages on this condition...maybe one or the other would be good for a major...as would webMD be o.k.

I didn't see any feedback from you for your peers.
LF
Choose topic: 10 points
Find four websites: 20 points
Peer reviews: 0 points

1. The NHLBI website wow! The two best things I liked about the website was: any question you might have is probably there and with good links also. The two worst things I found about the website was: none.

2. The Medline Plus website was also incredibly informative. The two best things I liked about the website was: the many illustrations it had as well as listing 2 support groups. The worst thing I found about the website was: the time it took to go through the whole website.

3. The WebMD website was good. The two best things I liked about the website was: concise and to the point in dealing with lung transplants as an option for CF patients. The two worst things I found about the website was: the statistics were 2 years old for lung transplants and that was also the last time it was updated.

4. The Childrens Hospital of Boston website was good. The two best things I liked about the website was: it talked about testing and who is at risk. The worst thing I found about the website was: it seemed very limited in scope when compaired to the other websites

1) Polymyalgia Rheumatica and Giant Cell Arteritis by

By medica8 gives its best to describe this disorder which is good. I like the way that it describes the factors of it. It was just a little bit hard to follow.
2) dic8® Arthritis & Musculoskeletal Disorders
Polymyalgia rheumatica from the Mayo Clinic has an excellent introduction and covers it expansively. There is nothing with this website that I dislike.
3)Advance for nurses was a great article because it was a personal story from a nurse and how she suffered from it. I liked it because it was more personal. It didn’t really have a good intro on the disease.
4) Polymyalgia Rheumatica (PMR) from medicinenet had extensive research on this and covered a good majority on the disease.
Emily Mitchell

1)Cystic fibrosis by the National heart lung and blood institute displayed the different affects of cystic fibrosis on the body and different names of this disease. It’s a fantastic overview on it.
2)Cystic fibrosis by Medline Plus had many illustrations, symptoms and therapies for the disease. It was extensive on the research of cystic fibrosis. There was not anything in this article that I did not agree with.
3)Lung transplantation for cystic fibrosis by WebMD mostly displays a pacifier to what to expect on a transplant and the process afterwards. But does not display much information on the disease itself.
4)Cystic fibrosis and genetics from Children’s Hospital Boston gives good information on how it is inherited. I like the way that it describes what it is in the chromosomes. It had a great display on the chances of inheriting the disease. It was just a very short article.
Emily Mitchell

Websites for Anatomy and Physiology I
http://www.nhlbi.nih.gov/health/dci/Diseases/cf/cf_onames.html
 This web-site is posted by the National heart lung and Blood Institute disease and conditions index. I believe this website is posted to help the public understand this topic as well as many others. It provides definitions of what the condition is treatments, signs and symptoms as well as other links related to your topic. This web-site covers a various topics dealing with diseases pertaining to the heart, the lung, and the blood in one’s body.

http://www.nlm.nih.gov/medlineplus/ency/article/000107.htm
 Medline Plus Medical Encyclopedia is the site responsible for posting the information about cystic fibrosis. I believe this website was posted to inform the public about the disease and provide images as to what can happen to an individual once this disease has grown. This particular website provides the reader with a more in depth look at what types of exams and tests to expect when determining if one has this disease, various links to support groups, a section on prevention and complications one may encounter.

http://children.webmd.com/lung-transplanta...for-cystic-fibrosis
 Web MD- Children’s Hospital is the website posting information about lung transplants in young children. This particular website is posting information about who is a possible candidate for this procedure, as well as information on where the new lung is coming from. This website also covers topics pertaining to recovery, what to expect after the procedure, and other options one may want to consider.

http://www.childrenshospital.org/az/Site1711/mainpageS1711P0.html
 This website was posted by the Children’s Hospital of Boston. I believe they posted this website to provide a better understanding of risks that may occur with this disease. This website also covers topics that pertain to risks related to ethnic back grounds as well as who(men or women) it effects.

Victoria,
Please be sure you follow the instructions for your postings. This seems like a fine topic to me, but you must tell us why it is interesting to you and how it relates to the subject material for this semester of Human A and P. Please add that on to your original posting.
thanks,
LF

Edited by author 10-22-2007 09:42 PM
I chose to write about cysticfibrosis because it is something I have been wanting to learn about. This topic fits into our course because it deals with the mucus and sweat glands which were covered in previous chapters. For example this disease affects one's pancrease, lungs, sinuses ect. This is something that is of intrest to me because it can be genetic and go undetected until one decides to have children. i also would like to learn about cures for this or if any at all.
-Victoria Fisher