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Topic: The Misbehaviour of Behaviourists - Michelle Dawson
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John Muraszko  8047
07-03-2008 03:14 PM ET (US)
Thanks, Jypsy, for /m8046 ,and thanks also on behalf of the small community of friends on the Spectrum, and all friends off the Spectrum who are supporting helpers as well, that will appreciate reading the article you posted. By the way, if someone asks, are you a real Romani?
jypsy  8048
07-03-2008 03:39 PM ET (US)
Not, not a Romani (but my cousin, a very talented artist in Montreal had the privilege of visiting and painting some Romani gypsies a few years back. I believe it was commissioned by a winery...)
jypsy  8049
07-03-2008 03:41 PM ET (US)
I sent the following to Autism Speaks:
"According to the Centers for Disease Control, autism affects as many as 1 in every 150 children in the United States. Therefore, it is estimated that 1.5 million Americans may be affected with autism." Could you please explain this? (or as a teacher would say "show your work") I don't understand the math you used that gave this result."

The reply:
"Thank you for contacting Autism Speaks' Family Services department. We provide information, resources, and outreach about autism as a service to the community.
 
1 in 150 is a staggering statistic and really hard to understand how it could be possible. Autism is a spectrum disorder and symptoms can range from very mild to quite severe. The best way to understand how the CDC came up with these numbers is by looking at the following link from the CDC explaining the difference between incidence and prevalence. It also explains why this number is important to know. http://www.cdc.gov/ncbddd/autism/faq_prevalence.htm
 
If you have other questions after reading the above link, please let us know and we will be happy to try and explain it further.
Michelle Dawson  8050
07-03-2008 10:26 PM ET (US)
Autism Speaks wrote to jypsy, "The best way to understand how the CDC came up with these numbers..."

"These numbers," the ones jypsy asked about, are 1 in 150, and 1.5 million. In the CDC link provided by Autism Speaks, the 1 in 150 is present and accounted for, but there's no trace of the 1.5 million.

The CDC does provide (as I wrote up-thread a ways) a figure of "up to 560,000 individuals between the ages of 0 to 21" in the US who are autistic, but as the CDC writes in their Autism-Speaks-recommended FAQ, this is "assuming the prevalence rate has been constant over the past two decades." Is Autism Speaks agreeing with this assumption? Now, that would be staggering.
Michelle Dawson  8051
07-03-2008 10:39 PM ET (US)
Re /m8042 , Orac at Respectful Insolence writes, "Why would a woman withhold chemotherapy from her child with lymphoma?" See http://scienceblogs.com/insolence/2008/07/...ld_chemotherapy.php

All I have to say is, I hope Jeremy Fraser somehow beats the odds stacked against him and lives. And that cancer, which kills about 70,000 Canadians per year, isn't anything like autism (see http://autismcrisis.blogspot.com/2006/11/spotting-difference.html ).
Michelle Dawson  8052
07-03-2008 11:14 PM ET (US)
Hi Philip,

I heard on CBC radio that 120,000 people moved on Moving Day this year. This year is the 20th consecutive Moving Day on which I haven't moved.

I scored 18/20 on the G & M Canada Day quiz, with both my errors in the Canadian part. While I know the UK national anthem is God Save the Queen, I don't know any of the words and couldn't even make a wild guess...

You wrote:

"In languages in which there is a formal and informal use of you, such as French with vous and tu, are children on the autism spectrum more likely than non-autistic children to take longer to learn their appropriate use, and when adults to use them inappropriately."

That's a good question. There's been no direct comparison that I know of re the learning and use of pronouns by autistics speaking or writing different languages which have different kinds of rules. Language in autism isn't one of my good areas, so I might have missed something.

I am pretty awkward in addressing people no matter what (in knowing what to call people as I communicate with them), both in speaking and writing, and I still sometimes get pronouns wrong.

Everyone at the hospital that I've encountered addresses Dr Mottron as "tu." But for a long time, I mostly used "vous." I'm not sure why. Now I mostly use "tu." I've made serious errors elsewhere using both; mostly I use whatever pronoun is handy. So I can definitely be very inappropriate in assigning "tu" and "vous" and also mess up other pronouns. It's a good thing, that things aren't as formal as they were.
   8053
07-04-2008 03:33 AM ET (US)
Deleted by topic administrator 07-04-2008 09:24 AM
Philip  8054
07-04-2008 04:56 AM ET (US)
Edited by author 07-04-2008 04:58 AM
The book 'How to live with Autism and Asperger Syndrome: Practical strategies for parents and professionals' by Chris Williams and Barry Wright, Jessica Kingsley Publishers (2004) states that "people with Autism Spectrum Disorders (ASDs) have great difficulty understanding the point of view or the thoughts or feelings of someone else."

Although the authors believe in the 'mindblindness' explanation for autism, they are sceptical of various treatments and interventions. They write that there have been no randomised control trials (RCTs) to show that gluten-free diets and casein-free diets work (or that they don't work). Also several RCTs have not shown any benefit from secretin, which some people suggested was a "wonder cure" for autism.

They point out that children on the autism spectrum improve and develop, and this is not necessarily because of any specific treatment programme.

They write that the Lovaas programme "involves 40 hours of intense home-based therapy per week with the child. [It] is very structured and requires high levels of compliance from the child and a great deal of repetition. Several therapists are employed. [...] Some [people] have wished to adapt the programme over the years including reducing the hours and the rigidity of the programme and basing it more in schools. Some parents are very keen on Lovaas, others less so. The success rates due to this method are reported to be variable. Some note that social skills learnt by rote in this way are not easily generalised."

The authors write that "children with autism may be more likely to have higher levels of a chemical called serotonin (5 hydroxy tryptamine) in their blood and, although we know that serotonin is an important chemical in the brain, specific brain abnormalities have not yet been found. We may know more in the future but at the moment there is no logical rationale for any specific medication based on known biochemical brain abnormalities in ASD.

There is about a page long description of the TEACCH approach, which has "revolutionised classroom layout, structure and activities to the benefit of children with autism spectrum disorders."
jypsy  8055
07-04-2008 06:25 AM ET (US)
Reply to Autism Speak's reply:
"Hi,

Thank you but my question was how does "1 in every 150 children" come out to be an estimated "1.5 million Americans". That is your number, not the CDC's.

Thank you."
JustJimPerson was signed in when posted  8056
07-04-2008 05:17 PM ET (US)
Regarding Jeremy Fraser:
"The father of an eight-year-old Saugus boy said today that he has ended all medical treatment for his autistic son so he can die peacefully, a move made after the boy's mother allegedly failed to get life-saving cancer treatment for the child."

see http://www.boston.com/news/local/breaking_...augus_man_call.html
 
Messages 8057-8059 deleted by topic administrator 07-05-2008 08:02 AM
Michelle Dawson  8060
07-06-2008 03:53 AM ET (US)
Edited by author 07-06-2008 04:17 AM
While I was trying to figure out when to oar in, the argument unfurled in multiple directions and became gigantic. So I figure I should start somewhere. I'm referring to the epic (and not nearly done yet) back and forth between the Autism Hub bloggers Christschool and Interverbal re a whole lot of things. Many others have leapt into the argument.

It all starts [sigh] in 2006, with Interverbal and this post http://interverbal.blogspot.com/2006/02/le...tradictions-in.html , which in 2008 received a response from Christschool http://autisticnation.typepad.com/thinking...f-skinner-on-h.html (which I mentioned here on TMoB), a reply from Interverbal http://interverbal.blogspot.com/2008/07/re...o-christschool.html , some, uh, rejoinders from Christschool http://autisticnation.typepad.com/thinking...nterverbal-def.html http://autisticnation.typepad.com/thinking...kinner-confuse.html , a notice of intention to provide a, uh, retort from Interverbal http://interverbal.blogspot.com/2008/07/peer-review-in-hub.html , and of course the zillion (or so) comments on all of the above.

I'm not sure I'm going to have time in the foreseeable to address a lot or even a bit of this, but I thought I'd start with Interverbal's 2006 blog post (this one http://interverbal.blogspot.com/2006/02/le...tradictions-in.html )--the thing that set it off (eventually). I had intended, I think, to point out some problems with this post at the time, but didn't get round to it for reasons long lost in the impenetrable fog of descending deadlines. So here goes.

First, I don't know Skinner's work well enough to comment on much of it. Skinner's work falls into areas I don't read a lot of: animal work and rampant speculation about human behaviour. Skinner was also a public figure though, and if I get further into this epic debate, I might point in the general direction of some of his public comments.

After introducing Skinner, Interverbal instructs us in how to see punishment the way behaviour analysts do. This theme of requiring critics of behaviour analysis to use exactly the same terminology as behaviour analysts is one that's errupted into prominence in the ensuing epic.

I'm going to disagree with Interverbal that one can only criticize behaviour analysis by adhering to behaviour analytic terminology, rather than putting this terminology under scrutiny and criticizing it as necessary. E.g., behaviour analysts don't use terminology like "self-stimulatory" or "stereotypical" behaviour consistently or, even within their own definitions (which may in themselves be questionable), accurately. There's a bit about this in Dawson et al. (2008).

I've never used common behaviour analytic definitions of "autism," because I find these definitions to be biased and ideological rather than accurate and scientific. Behaviour analysts, including Nate Azrin (who is mentioned by Interverbal), have, e.g., defined "autisms" as a bunch "nonfunctional" behaviours (e.g., rocking, hand gazing--two behaviours I have) constituting a "pathological pattern of behavior" (Azrin et al., 1973).

And Ivar Lovaas has repeatedly denied the usefulness of autism as a diagnosis, considering autism to be a social construct and a failed hypothesis that stands in the way of effective treatment (Lovaas, 1981; 2003; plus numerous papers by Lovaas or Lovaas and colleagues throughout Lovaas' career).

In my view, a lot of behaviour analytic terminology as applied to autistics (and more generally as well) not only can but should be questioned. Precisely using behaviour analytic terminology might be impossible (because the terminology isn't precise), inaccurate, unscientific, and/or unethical.

More on this later if I get back to the epic. But here's one example I wonder about. "Positive punishment" in behaviour analytic speak is supposed to involve the presentation of stimuli, while "negative punishment" is supposed to involve the removal of stimuli. "Time out" is the classic behaviour analytic example of negative punishment. But this falsely assumes that time out does not involve the presentation of stimuli.

Right--back to 2006. Interverbal refers to Lovaas et al. (1965) as "the first to use punishment for autistic children." This is false, so far as I can tell (and Lovaas used aversive procedures on autistic children before he started using the kind of electric shock he reported in 1965). E.g., Wolf et al. (1964) clearly used punishment with a child described as autistic.

And I'm not quite sure what to call the short time outs used by Ferster and DeMyer (1961) or how to describe a setting aversive enough such that an autistic child "hammered" "with increasing intensity" on the door of the room he was locked into, alone. Never mind that these two autistic children, while locked alone in a room, received electric shocks because the experimental apparatus was badly made. Seeing as these electric shocks were successful in reducing behaviours, shouldn't they be called punishment?

I agree with Interverbal that mainstream behaviour analysts (including major figures in behaviour analysis, and the current major ABA textbooks) have embraced and continue to promote the effectiveness of punishment and aversive procedures. In a way, Interverbal is also right when he says, "but we knew via research that aversives were quite effective." The "we" here refers to behaviour analysts, and it's accurate to say that by behaviour analytic standards, "aversives were quite effective."

However, by standards that are commonplace (they aren't universal, but they are overwhelmingly consensual) outside the behaviour analytic arena, the evidence supporting the use of aversive procedures (within the area of ABA) is of overwhelmingly poor quality, such that these studies (both individually and collectively) are only poorly informative about the studied procedures or interventions.

I suggest that Interverbal's statement that "aversives were causing problems in social validity for us" shows that behaviour analysts may have questionable priorities.

Re Harris et al. (1991; the "Does Punishment Hurt" paper I described in TMoB), Interverbal writes, "this article did not establish if such aversives truly were effective or justified in terms of helping the students." That's right, but the authors gave priority to the explanation that the use of strong aversives results in a "greater chance of client response."

Interverbal wrote that Rekers and Lovaas (1974) and Rekers et al. (1974--Interverbal cites this incorrectly in his text): "used spanking to modify the behavior of the effeminate boys to make them more masculine." Interverbal goes on to state that this "was challenged along ethical grounds by the behavior analysts" Nordyke et al. (1977). This makes it look like it was primarily, or possibly only, the spanking that Nordyke et al. objected to, when--as I pointed out in TMoB--objections to the use of aversive procedures were a minor part of Nordyke et al.'s criticism.

Interverbal then writes about Lovaas (1981), The ME Book, that it "advised aversives; namely, a single slap to the thi[gh] or buttocks" (I've corrected what seems to be a typo). This is inaccurate.

Just from memory, The ME Book mentions the use of many different kinds of aversive procedures, including electric shock in some circumstances. At the more everyday level, there is the recommendation of a very aversive (painful and humiliating) form of restraint, to be used as punishment. There is the recommendation that children should be pinched. Then there's the paddle (I remember reading along and stopping dead and saying out loud, "paddle?!"), which apparently you are supposed to use to hit a child (that's not a slap any more), and then carry around with you to remind the child that they can at any time be hit, by a "paddle."

And that's off the top of my head (did I mention, really loud shouting?--but that pales into the background within The ME Book), staying within the behaviour analytic definition of punishment.

Interverbal writes: "However, this still preceded the landmark study Lovaas (1987) in which following two years of treatment based on “The Me Book..."

Well, no. That's two years or more of treatment. And treatment could not be based on The ME Book, sorry. Treatment started in 1970, more than a decade before The ME Book was published. The references and "recommended reading" in The ME Book overwhelmingly are dated after 1970 (there are only a few exceptions), all the way up to 1980, making it unlikely that the manual was written by 1970.

Interverbal wrote, "Lovaas has repudiated his use of aversives." I disagree. And not only because of Dr Lovaas' enthusiasm for aversive procedures when I spoke with him in 2003 (he stated that it was much easier getting results when aversive were used). Dr Lovaas was involved in a 2007 ABAI annual meeting presentation where guidelines were provided under which aversive procedures should be used with autistics. I haven't seen this presentation, but if Dr Lovaas is repudiating the use of aversive procedures, this was totally left out of the guidelines he was involved in presenting.

Then there's the possible reason, which doesn't involve Dr Lovaas repudiating anything, that aversive procedures were abandoned at UCLA. See http://autismcrisis.blogspot.com/2006/11/a...aversives-part.html

And more obviously Dr Lovaas has no more repudiated the use or his use of aversive procedures than any other behaviour analyst (or other scientist) who continues to cite and promote Lovaas (1987) as evidence for the effectiveness of early intensive ABA programs.

There are things that Interverbal left out, that I'd think were important enough to at least mention, but that's enough from me for now.

I think some of the above, while it's targeted at Interverbal's 2006 blog post, addresses some of the more recent arguments thrown around in the ongoing, unfurling epic. I apologize for how informal the above is; I'm busy, have a lot to write, etc., and would be delighted to be corrected if I've made any errors in my general distractedness and stressed-outedness.
Michelle Dawson  8061
07-06-2008 04:25 AM ET (US)
Edited by author 07-06-2008 05:30 AM
Housekeeping: two things.

One is that my previous message ( /m8060 ) was posted by accident of inattention before I read it over. Sorry. I've since edited it so that it makes more sense. And is shorter. That's for the email subscribers, who might want to visit the board itself for the edited version.

The other is spam. We're getting a lot of spam, for reasons I don't have a clue about. I apologize to the TMoB regulars. When you see deleted messages on the TMoB board, they are spam unless noted otherwise (if anything is deleted for non-spam reasons, someone will let you know why). We've had bad patches of spam in the past. Mostly, they were short. Here's hoping this run of spam runs out too.
Michelle Dawson  8062
07-06-2008 05:47 AM ET (US)
Further to /m8060 [sigh], Interverbal has now added another post to the epic. See http://interverbal.blogspot.com/2008/07/not-sparta.html

This adds yet another heap of statements requiring criticism. Some of them are lulus. I'm sure I'll never catch up.
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