I have just written again to orgs and the government here in the UK where the ABA is totally out of control
http://www.freewebs.com/persphone/stopthisplease.htmWhy ABA for Autism MUST STOP
Dear NSPCC / Mencap/CAFAMILY
I have a son badly damaged by the 'ABA' (Treehouse) system. I made the sytem available in this country via tribunal years ago. I was used as a scapegoat by wealthy and influential parents. They needed a 'poor' single mother (also disabled) to fight for the sympathy vote to open the floodgates to this dangerous 'therapy'. And I won the tribunal by manipulating hte local LEA into agreeing to funding 'in principle' which won me the tribunal.
They will tell about me and my argumentative reputation. I am difficult. My child is being abused by this regime, I am angry, I am difficult regarding ABA and the con and cruelty that it IS.
I can do nothing about it due to having lost custody of my child due to illness.
Sadly (my belief) there are several groups of 'ABA' and 'CABAS' schools. Check the very
wealthy charity 'Treehouse Trust', director Virgina Bovell, also director of the National Autistic Society - it (ABA) is a massive movement that sadly permeates throughout the world of autism, nearly always taking the the side of the parent rather than advocating for the childs' welfare and advancement (especially regarding esteem and independence being hindered and impeded by this doctrine, for want of a better word) with 'compliance' being the main goal.
In my experience their curriculums are supposed to incorporate IEP's (Individual Education Plan) but each 'behavior' is 'targetted' as unwanted, even if it's a natural neurological reaction like hand flapping (that in my opinion comes naturally to ASD children and oughtn't be surpressed unless really offensive (?)) - they also are supposed to incorporate the National Curriculum too, but using 'ABA' methodology to do so, which in these instances (within ABA schools) means '10 trial data' -most of the teaching is based on repetition ( if a child does something correct 10 times in a row, he gets a sweet for a reward or a verbal reward) In short it is very Pavlovian, in fact it is just Pavlovian.
It is very difficult to see precisely how they teach the children within schools as they command 24 hours notice prior to visits - even to parents and Educational Pyscholigists (some of whom have also been fooled) as they keep all windows and shutters down to 'keep children from being distracted'.
Having said that, sometimes two or three classroom assistants sit opposite two or three pupils using 'mands' (commands/requests, imagine the confusion of an autistic mind hearing all those requests!)) taking a 'negative' data if 10/10 isn't reached, eg a child doesn't get 12 piece puzzle correct for the 10th time that session. This does mean the child is subjected to having to do eg a 12 piece puzzle hundreds of times a week - some might view this as more than degrading treatment, it seems like a punishment, and how convenient a lot od ASD children laugh and giggle when in pain or anxious, the 'happiness' reported is often quite the reverse.
Many 'experts in autism' have been fooled by these professional manipulators, who do seem to eventually lose sight of the childrens' welfare altogether and become obsessed with 'the programs' rather than the childrens' advancement and development- there is no room for these children to develop naturally in any way. Not all Autistic children have behaviour problems. are damning autistic people - whom are generally very terrrified children to start with. In my opinion, the last thing Severe Learning Disabled children need is this regime.
They (ABA ) use 'backward chaining' too, it seems there is absolutely no room at all for the children to evolve a sense of self, independence, esteem, develop naturally or anything positive. The children come to learn that the word 'well done' and 'good work' -all praise, means nothing at all. When any progress is made, it is always attributed to the method, not the child. The children never make lasting progress, they never evolve any independence, the reverse, they become dependent on 'prompting' or can do nothing much.
If I'm wrong, please prove it.
I have alerted authorities (Mr.P Dhanda MP copied in) but they refuse to take action and are in favour of these parent-led schools, which really need an overhaul by the DRC etc etc in my opinion.
One child I know is SLD (CAPD too) non-verbal autistic after 10 years of 'ABA' he is terrified not to attempt to imitate everything (the schools believe everything can be taught via imitation) except speech - it would be nice to have some laws in place to protect these children, some being forced into these schools only on the say-so of 'ABA experts' of whom virtually anyone can call themselves one, me included having been trained to 'supervisor level by several of these 'consultants' - some poeple running 'ABA' agencies have been trained by ME.
The Behavioral Consultants don't have a great reputation either. I'm amazed these schools have been allowed to go on like this. There is a lot of psychological trickery involved for the sake of money and frankly, this 'cutting edge' therapy (ancient, check 'patterning' from the 60's) makes some parents feel overly optimistic for their childrens' future, I am hearing now from parents who began ABA as home programs 10 + years ago only for them to be complaining and panicking at 'regression' of their children . The children are getting angry and beginning to write in blogs (if you google 'Autism Diva' you'll find fascinating insight on ABA there too)
For more information on ABA from an autistic perspective, please search 'Michelle Dawson' an autisitc adult attempting to expose ABA herself, via the Supreme Court of Canada where parents are demanding this 'therapy' as a Human Right, when autistic people themselves are demonstrating the torture it causes them, why wont even their own parents hear them?
The article 'The Misbehaviour of Behaviourists' by Michelle Dawson I can vouch for, having 15 years experience of the key players.
Advice on how to approach the schools and the government on exposing these kindly but misguided parents would be greatly appreciated. As it stands, basic psychologists are consulting over private schools that cover a range from mild Asperger to SLD non-verbal Autism - even Downs etc.
I dont believe the parents are deliberately malicious, they are simply being conned into believeing this therapy will miraculously 'recover' their children with false tales of miracle 'recovery' that is simple fabrication by the 'consultants'
Personally when using an 'ABA' program my child was forced to sit in a chair for two weeks with me ordered into the garden 'get drunk and you wont her the screaming' I was told by Kim Fellows, a self- branded supervisor from Birmingham whom used a false American accent ''becasue it helps the kids more''
We're not talking about using appropriate 'positive reinfocement' or ABA as is used by Gary LaVigna et al, the ABA schools of Treehouse Trust, CABAS, LEAP etc and home-programs actually, in my view, are a horribly violent abuse of SLD- Autistic children and it requires urgent change now, in the meantime, anything I can send to the schools - links, papers, laws etc to help them understand the harm they are doing, would be greatly appreciated, as it is I personally hate them all and that wont help my child or any other, at all.
Regards,
Elizabeth Robillard
www.elizabethrobillard.co.uk