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Martha K.
05-24-2012
12:36 AM ET (US)
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Hi Renee, Thank you for taking the time to read my story! :) I actually wrote it up in a blog now so that I don't have to use the one the company made. I really didn't like to look like I was advertising for the company. So here's my blog... http://help4acidreflux.wordpress.com and the title of my story is "My Journey in Finding Answers to My Children's Acid Reflux and Milk Intolerance". Where to get alkaline, also known as Kangen, water? Well, you have to buy a machine that makes it. The machine hooks up to your faucet and your regular tap water flows through it. There are plates inside the machine that separate the water by using the minerals in it and then puts it out 2 different hoses. Alkaline water out one hose and acid water out the other. There are many brands of alkaline water being sold out there and I'm sure you can look them up on line and read reviews etc about them. We chose the Enagic brand for several reasons. One being that it is the only brand that is an approved medical device in Japan. They use it in numerous of their hospitals over there to treat patients. (Japan is number one on a scale of how healthy the country is and the USA is number 43.) :( If you go on line and research these machines you will find that a lot of companies will compare themselves to Enagic and say "we are just as good as Enagic," or " we are better than Enagic." I personally feel that Enagic is the top-of-the-line company. But you can research and then decide what kind of machine you would like to own. Here is a link to see a demo about how the water works. http://www.kangendemo.com/ If interested in the Enagic brand, here is a link to their site http://www.enagic.com/I feel very badly for your grandchild. MSPI is tough. I hope you can soon find the answers you are looking for. Edited 05-24-2012 12:38 AM
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renee w
05-23-2012
12:36 PM ET (US)
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my grandson has mspi.omg!this was so difficult for the first 6 wks he screamed and balled up in pain for at least 18 hrs a day.it took an army of people to care for him we did it in 1/2 hr shifts!i have been around babies all my life and even worked in child care, i have NEVER seen this before. my daughter is young just 20 yrs. old she must have brought that poor baby to the dr. every week for the first 6 wks. the dr. kept saying it was "just colic" and i think they thought she was just a nervous mother or something. well i decided it was time to do some research on my own i put extreme colic into google and mspi popped up! finally we knew what was wrong! my daughter made an appt.for that day and i went w/ her this time and i told the dr. that i KNEW what it was-mspi! finally took it serious.she prescribed prevacid and we put him on the nutramigen! it took a good 2 wks but gradually it got better. hes 4 months now and its like night and day! now we are trying to figure out the "next step" as far as his diet. we tried organic rice cereal first that was not good after 2 hrs. he went back to the screaming and being in pain. yesterday we gave him pears and that has been just fine, but i'm wondering where i can get info on what to give him to eat,as he can't just live on pears. formula doesn't keep him satisfied for long, so that brings me to another question- i'm wondering if you others have a baby w/ this mspi does the baby seem to have an appetite that can't be satisfied? if anybody knows where i can get a list of first foods for this condition please let me know, my e-mail address is ttiwbig@aol.com. and thank you martha k for the useful info where do you find the alkaline water? one last thing GOOD LUCK TO ANYONE DEALING W/THIS...ANYBODY WHO HAS A BABY W/THIS HAS TO HAVE THE PATIENCE OF A SAINT!!!
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Martha K.
05-08-2012
05:20 AM ET (US)
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Earlier I posted a short version of what we went through with our children but now the company I got my supplements from that helped my children, made my whole story up in a pdf. I just figured out that I could post the link so people can go read it. Hope this works! http://www.corehealthproducts.com/testimon...s/a-mothers-cry.pdf
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Mom2natertot
05-07-2012
03:26 PM ET (US)
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Mom of 4: I'd love the info! Olscarrie@gmail.com
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mom of 4 all w/ intoleran
05-07-2012
02:18 PM ET (US)
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Hi guys! I don't have reflux in my house anymore but when I find something good I always try to come back here and share it since this is where we first started our healing journey 8 years ago. We have been on an SCD enhanced diet using www.pecanbread.com for years now, five to be exact and I have recently come across two other protocols for intestinal healing, improved immune function and overall health that I thought some moms might want to read about. One is the GAPS protocol which is really based on Elaine Gottschall's diet but was modified by a neurologist who had a son on the autism spectrum. She incorporated a lot of Weston Price Diet principles and a great deal of fermented foods and cultured foods to naturally populate the gut and keep digestive issues away. Her clinic has helped hundreds of people and now she is training GAPS practitioners all over the world and recovering children with autism, asthma, ADHD and allergies. Many of these same conditions are also related to heart disease, dementia, dyslexia, and cancer. Here are a few videos that I thought might be of interest and of course if you have questions for me, please do ask. I have seen amazing strides with the Weston Price principles as espoused in Sally Fallon's book Nutritional Healing. This information has been around for over 100 years and it is so shocking that doctors practicing today seem to know zero about it and 100% how to medicate and do procedures on our little folks. Here are a few books you guys might be interested in if these videos ring true for your family's situation: Nourishing Traditions by Sally FALLON, (Weston Price Principles culturing, broths, fermenting, good fats A D E and K2) Breaking the Vicious Cycle by Elaine GOTTSCHALL (gut health and connection to many disorders of our day-based on an old diet) Nutrition and Physical Degeneration by Weston PRICE (how he obtained all his research and his x factor k2 discovery) Cure Tooth Decay by R. NAGEL (a money saving book and very revealing about how to really take care of teeth) Here is the video summary and worth watching although you can tell the author is new to video making: http://www.curetoothdecay.com/tooth-decay-...wt_m=L3QgGfkfu2pPFS Prescription for Natural Healing 5th edition by BALCH (a very complete reference for every ailment you could have and the natural remedies to tackle it yourself including dosing by age-wonderful resource book) Gut and Psychology Syndrome and Put Your Heart in Your Mouth by Natasha CAMPBELL (her books are based on the Gottschall works same SCD diet and are for diabetes, cancer, autism, epilepsy, etc. and you can read an interview here: http://mercola.fileburst.com/PDF/ExpertInt...ell-McBrideGAPS.pdf ) Her GAPS protocol for kids with gut issues on video here: http://www.youtube.com/watch?v=nLP0Ijo2CK4 Also her Heart book summarized on video here: http://www.doctor-natasha.com/heart-in-your-mouth-book.php Healing the 4A disorders by Dr. Kenneth BOCK (For Allergies, Asthma, Autism or ADHD, and the case for diet, detox and good targetted supplements - how what is affecting the young population now will be affecting us all soon) Regaining and Maintaining Your Health by RISLEY (Cayce remedies for every ailment and a full explanation of metal toxicity in todays foods and environments) Encyclopedia of Healing by KARP (the recording of Cayces remedies such as the wonderful castor oil packs for intestinal healing) The Green Body Cleanse by Dr. GROUP III ( a very good primer on environmental chemicals and toxins and gut repair) I would also sign up for email newsletters from www.drmercola.com He is onto some of the most pressing health issues of our day and he cites his work and sources properly. I also have a large document with summaries of all these books along with many helpful tips I have compiled over the years. If you reply to my email address, I will happily share it with you. blessings to you in your healing journey! Amanda, mom of 4 now healthy darlin's ;-) amandakay76@yahoo.com Edited 05-07-2012 02:19 PM
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Dani
04-27-2012
08:57 AM ET (US)
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How can we know if we are in this situation? what tests should we do? model cv
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Martha K.
04-25-2012
10:40 PM ET (US)
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Ruth Siem, I have emailed you but am not sure if you got it. I am sorry for not replying sooner. Today we returned from a 2 week long trip and I just got your message. I don't know why Core Health Company didn't reply to you but hopefully they have by now. You are more than welcome to email me still though. I would be more than happy to help you if I can. If anyone else would like to contact me you can email me at marthakoehn83@gmail.com.
Diana, I feel for you and your baby! :( I would highly encourage you to give Shan Stratton a call. I can not guarantee that he can help with Crohns disease but I am fairly sure that he could help answer some questions and most likely help your daughter at least some if not quite a bit. Even if you don't want to try their product they are very willing to just answer questions. If you call 480-275-2272 you are more likely to get a hold of Shan (the owner) than if you call the 800 number listed below.
Mom2natertot, I think what you said is very on course! :)There are more ways than one way to treat illnesses!
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Mom2natertot
04-19-2012
12:42 AM ET (US)
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Diana, I'm so sorry to hear about your daughters diagnosis. My husband has crohns, but was not diagnosed until 28. He had major surgery, removing 6 inches of his colon, and has been off and on steroids since. As he continued to decline in health (his outward symptoms of a flare-up are extreme fatigue and of course frequency/irregularity of the bowel), his dr told him he needed to start IV steroids, going to the hospital to sit for three hrs every couple weeks. His dr insisted that he could continue to eat whatever he wanted that didnt "bother" him. In the meantime, we were pursuing treatment for my highly corn allergic son. We spoke with a woman named Angela Howard at Heart of the Dove clinic in Omaha, NE. I live in AL, but was able to have an hr long conversation with her that first time. I balled when we hung up, bc not only did she give me hope for my son, but she herself had been diagnosed with crohns in the 80's and was able to cute herself with diet and intestinal healing. I've heard from several different reputable sources since then that crohns is nothing more than IBS that has been mismanaged, and IBS is a result of food allergy and intolerance. In our case, that theory proved correct, as my husband has gone through AAT (Advanced Allergy Therapeutics). Since starting treatment last July, he has gained 12 pounds (he hasn't been able to gain weight in 10 years and was slowly losing), and can eat most anything, including dairy, which he has also not been able to eat in many years. Turns out I was actually making him more sick bc I was forcing him to eat an eggy breakfast every morning to try to gain weight. Well AAT revealed he was intolerant to eggs. Anyway, I don't fault you for following drs orders, but I felt compelled to let you know there may be another option for you if you get to that place. Nothing is worse than hopelessness. Hugs to you and your sweet girl :)
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Diana
04-19-2012
12:17 AM ET (US)
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Not good news. My little one, whom I thought had outgrown all her food issues and milk protein allergy etc. has now been diagnosed with Crohn's Disease at the age of 4 1/2. Looking at her food likes and dislikes and what she tolerated and didn't as a baby I'm pretty convinced this is what we've been dealing with all along. Now we're into heavy medications including IV drips, Prevacid, steroids, the works, and we're starting at square one with diet. Sigh. When I can get a handle on what works for her I'll fill you in, but I think that ends up being very personalized. Right now she's subsisting on protein and refined carbs, oh joy! Docs promise they can bring her up to a growth curve between me and my husband, that will be something to see! Wish us luck and a whole lot of love, I thought we had finished our helicopter parenting days.
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Ruth Siem
04-18-2012
04:00 PM ET (US)
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Marth K, I am wanting to ask you some questions about probiotic. I have tried to contact the company, but no response to my email. Would you be willing to email me at firepac@msn.com. Thxs, Ruth
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Martha K.
03-26-2012
02:55 AM ET (US)
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When my first baby was born (5 yrs ago) he became very fussy and started having blood in his stools at a week old. To make a very long story short(er)... At first I was told he had colic. But I kept persisting so the doctor tried him on 3 different meds for acid reflux. After seeing that those didn't help the doctor got more serious and started doing different tests on my child. In the meantime, my baby screamed in pain for hours on end. He slept for a max of 10 minutes at a time and constantly had bloody diapers. We spent hundreds of dollars on gas drops and gripe water. By 12 weeks old the pediatrician was exasperated and ready to contact a specialist. Before that happened though a friend suggested that my baby could have MSPI. I quit nursing and started him on Nutramigin and kept giving him Prevacid. He greatly improved. I was aware of the fact that if your first child had MSPI that all your children will most likely have it too, but we wanted more children anyway. With my second one I tried to strictly avoid all milk and soy products so I could breastfeed but he still suffered from digestive problems so I sadly gave up nursing at 8 weeks and started him on Nutramigen and Prevacid. (My 2 year old was still taking Prevacid and couldn't tolerate milk or soy). About a year later we discovered alkaline water. It helped neutralize all the excess acid in their stomachs enough that they could quit their meds! But I continued to wonder what caused their stomachs to produce that excess acid. When my boys were 4 and 2 we were considering another child but I was really scared! I just didn't think I could handle another "screaming in pain baby" but hoped that by me drinking the alkaline water it would help my baby. Shortly before I got pregnant a friend suggested that I call Shan Stratton. (He is owner of the Core Health Products company, a nutrition consultant for many professional athletes and is internationally known for his heath education seminars.) The call I made to him has had a life changing affect on me and my family! I will try to tell you the basics of what I have learned from him and also from some of my own research. When a baby is born it has a sterile digestive system. Which means there are no probiotics (good live bacteria) in it. Probiotics are what line, coat, and protect our entire digestive tract; plus aid in digestion. A baby gets its first probiotics while traveling down the birth canal. After birth it picks them up from physical touch and breastfeeding. It normally takes up to 3-6 months for all the probiotics to be fully developed. So this can be why babies often "outgrow colic" by then. It is also possible for a baby to inherit an enzyme deficiency from either parent. The pancreas makes digestive enzymes and puts them in the stomach to break down our food. If the stomach doesn't have enough enzymes in it, it will make excess acid to try to break down the food. This excess acid causes acid reflux, heart burn, indigestion, etc.... and also will kill probiotics. Proteins are one of the hardest things for the stomach to break down. Shan told me he sold a probiotic/enzyme supplement and that they would help my boys, plus if I would take them while pregnant I would have a baby with a healthy digestive system. So, my boys and I started taking these right away. My boys improved quickly and soon could eat any kind of food they wanted without getting a tummy ache. I was surprised that my digestive problems (that I had just learned to live with and didn't think much about anymore) went away. I began to have new hope and became excited about having another baby. A year later I gave birth to a sweet little girl. At first I was apprehensive about consuming any milk or soy products but it didn't take long and all my worries left me! I now have a 5 month old baby that I am still breastfeeding and I eat anything I want to. She has absolutely NO tummy trouble. I've never even given her any gas drops or gripe water. I am so happy and thankful to finally find answers to my children's problems that I am trying to share this info with as many mothers that I can. Please pass this on to anyone you think could benefit from it. If you are interested in Shan's product you can go to his website at www.corehealthproducts.com or call and talk to him or his assistant (Chris) at 800-342-4792. Edited 03-26-2012 04:24 AM
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Dawnetta
03-13-2012
08:53 AM ET (US)
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Cassie - I asked a lactation Specialist at Methodist in Omaha about this during my second pregnancy. She suggested the last 6 weeks to month of pregnancy, to make sure you milk is completely CLEAR (that 6 weeks provides a little time in case the baby comes early).
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Cassie
03-12-2012
09:40 PM ET (US)
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My first child was MSPI and was able to have dairy and soy by 14 months. He eats anything he wants now with no problems. We are expecting our second boy April 18. I want to breastfeed so my question is should I go milk and soy free now or wait until he is born to see if he has any problems? Justin (my oldest) was showing signs before we ever left the hospital so if this baby has it I'm sure we will know fairly quickly.
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Dawnetta
03-06-2012
09:05 AM ET (US)
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Joann- Alimentum never worked for my daughter, you might try Neocate. You can always try to reduce back to something cheaper again later, if you can get her to a better place.
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Dawnetta
03-06-2012
09:04 AM ET (US)
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no problem Joann- I nursed my first to 14 months and my second to about 5 months on a MILK and all SOY free diet (the 2nd was nursing non-stop, to the point where my daughter was really struggling with the attention and time it took) Over his 5th-8th months (now on formula) we gradually went off Neocate (which I had been supplementing with) and figured out that he did fine on Enfamil GentlEase. He is now 15 months and still on prevacid solutab and WHOLE MILK! My Daughter transitioned to Rice milk from Nursing, went off prevacid at about 2, Grew out of her MSPI at about 2 1/2 and now at 3 1/2 is starting to sometimes drink Vanilla flavored 1% milk.
The 14 months of Nursing my daughter was a constant struggle, with the stress of the diet and being unable to pinpoint any other offending foods, but she was my first and at that point only, so I kept at it.
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Joann
03-05-2012
05:12 PM ET (US)
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Thanks Dawnetta. Were you able to nurse? Sadly, we've already moved on to Alimentum + prilosec, but she doesn't seem to be getting better yet.
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