shame on me talking about sunshine,when you are getting snow,stay warm!!Guess winter time is coming, we were getting worried about the hummingbird who comes to the feeder on the porch,but he packed his bags and headed south last week.
Been sewing today, recovered the seat cushions on kitchen chairs,now they are orange with red buttons ,sounds horrible !! don't look half bad,
Sharpening up my sewing skills, want to make dress to wear to this wedding, have not worn a dress in years, so have been exploring patterns,and delving into how to draft a pattern, lots of information on line, love this computer and all the info i can dig up from my little laptop. And all the places I can go.
Hope you had a good day. hugs Pat

Well Folks! Greetings One and All!

It's great to claim so much so often! No use claiming boredom!
Or too busy.

Am I glad? Am I glad to hear from Two of the Best?
Oh! Yes! Indeed! I am happy and pleased!

I'm not sure - - - do I want good functional well shod feet?
Or a simple wing to ride the surge?

Either. And/or both. Depends on the traveling needs.
Always need to get the mostest for the leastest!

* * * * * * *
OKAY! Naomi. For me -
"Follow yOUR Bliss" means Get the Attention needed to free us - each one, and all together.

To me, for me this means recognizing my lifes' work. Work done because I, most likely was the only one who could and would do it. !?! Because it needed done. Because if I did it, all would be ok and better.

It seems this is true for all of my people contacts. For the rest of the world - animals/plants/rocks/ -/-/---? Maybe someone else can do that evaluation when their world is too boring.

I want to comment on my marriage partner. Most folks who knew him never gave his polio survivor statis any attention. Thank goodness. Nobody can, could ever say if that hurt or saved him!

He learned early to choose friends and their abilities. He learned to live with his skills and lack of skills.

Since I became a "survivor" I appreciate him more than ever.

If my survivorship can help some of us "more than cope" , Tell Naomi " THANK YOU ".

THANK, YOU Naomi, Thank YOU.

So this is how I "Follow yOUR Bliss".

Enough said for now.
* * * * * * *

So what is happening here? I may be gaining a better use of all
assests on hand! Don't know. Just letting folks adjust to needed changes.

So I don't know or guess my current conditions. I just keep on keepen' busy!
You can ask or suggest as you need.!

I'll play with the flying Pat has provided. What fun! Thank you. Thank you more than I am able to say.

Naomi - Please do let me try anything. The very least I can do is say "I can't, I am sorry."
That costs nothing. But if I can and do - - -? Who knows?
At least, always, we can say one is trying - - - -

My condition - no one knows. I am trying to be as little noticed as possible.
Why bother about much more? I make notes here - to balance what they note in the "business".
I can only hope that some who know this, will use it, when/if it can help improve living for all.
Many Thanks.
:)gwenith hugs

Mom/Gwen is having a rough night. Very short of breath with bad pain across the whole diaphragm. Asks that I tell all she will be back onlinee as soon as she can.

Hi Folks, Plese help by posting and levig a address!
I'm usig an older laptop of my daughters supply.
Don't kow what axed my gift from Naomi/Pat/?/?.
Last Moday morning - thnks for caring.
Will try to keep up with you here.

Hugs and muchlove, :)gwenith

Hi (((Gwenith))) Glad to see you here. Very sorry to hear your laptop is being cantankerous. I got an e-mail from Wileen and am goi8ng to try to help her get the one I sent you fixed.


In the meantime, it would be good if you could check in at the www.tbihome.org main discussion board. Your fans are calling for you and are a bit worried.


I do have more Jean Auel books here but I think they're duplicates of the ones I already sent. Would you like to have them?


About the "Follow Your Bliss" meaning for me. The quote from Joseph Campbell is "Follow your bliss and doors will open where there were none before." So for me it means being able to have the tools about you that help you identify what you're passionate about, what you really enjoy doing - and maybe are unable to do right now due to BI or needing to live in an assisted care facility, or being isolated in your own home.


I think an important step in healing offenses to the brain (injuries, strokes, disease or toxic event) is being able to learn about your condition and finding others that will be supportive and safe as your world begins to make a bit more sense.

So, first goal in my mind, is getting computers out to people with BI and their caregivers who need and/or want them and pointing them in the direction of communities where people dealing with the same things can help teach, offer support and be an understanding source of advice, etc.

The computer also provides the tool to open the door to the World Wide Web where a previously isolated survivor or caregiver can connect with other people that may have drolpped out of their lives, hobbies they've missed, allow them the chance to search for that idea or interest that really brings them joy. Maybe it's teaching others. Researching medical advances. Writing biographies. Helping change the laws and policies that impact your family now. Reading, gaming, creating, learning anything you can imagine, taking a cyber-tour to the South of France, or taking the train ride across Europe.


A computer, unlike anything else in a disabled persons world, opens doors into the minds and lives of others. Allows you to discover the things in life that excite and motivate.

My daughter's dream was to act. Years after her brain injury I encouraged her to try out for a small part in a local play. She did, she got a few rejections, but then she got some parts - and she was ECSTATIC! She began checking upcoming plays, movies, community events, etc. Once she took the first step to follow the dreams she'd always had - it was incredible how many connections she made, the referrals she got, awards, etc. She had risked fallowing her bliss - and as predicted - doors opened where we never knew them to exist before.


My dear friend Gwenith here has so much to offer - her insights, her experiences, her judgements, love and caring and leadership by example.


I would love to see her write about the things she's done and learned in her life - if that's what she wants to do. She's a natural teacher who possesses the best quality I know - a never-ending hunger to learn more. A curiousity that keeps her mind ever-expanding.


A part of my bliss was to find a way to begin accumulating old laptops and making them usable for people like my daughter and Gwenith. This is a part of my life where I am limited in what I can do, so giving this gift to Gwenith was also a gift to myself to see her appreciation and that she was able to go further and faster than before.


So that's what the "Follow Your Bliss" tag means to me. It means continuing to be able to get working laptops that can be personalized and tailored to the initial needs of those dealing with Brain Injury or Disease so the vast wealth of information they have to share with the medical field and society in general is made a possibility.


Darling Gwenith,

what I was thinking I would like you to try to do as a member of this team is to try to write about how quality of life can improve if one has access to a personal computer and the internet. Write that part of a

1) "needs assessment" (do you need it? To begin with? For just awhile? Does it matter if connectivity is continuous and reliable? How long do you think you'll want to have a computer of your own?) try to answer for youself and if you like, as you think it may apply to others

2) "benefits analysis" (how does it help you? has your life changed having your own computer? Has it had an impact on your health? On your relationships with others? Have communication skills improved or declined since getting the computer?) and again, answer for yourself and if you can, as you think it may apply to others

Those are the questions that first come to mind if we want to try to get funding to get more and better computers more often, and people who can commit to getting them set up for shipping.

My darlin ((Gwenith)) there's more you could do if you like, or less if you're not up to it.

Like, you wanna be "Vice President of Design" who picks out the initial programs that each computer should be sent out with. Or, would you like to have people who are new to the BI world come here to get some ideas about the computers and what they can and can't do, etc? There are so many possibilities.


You please be healthy, or at least be working at getting that way. You're my inspiration, friend, and more.

Love n hugs, Naomik

Hi you!! Naomi! Hoping you are as well as you sound in print on line!!!

Just letting you know that I will try to do a daily word here for now. - in response to your requests.
Will appreciate any and all of your, or anyone's, thoughts to help guide where I go with it.

All for now. Thanks much. tbihome here I come hoping to sign in correctly!!!
Hugs. :)gwenith

Just a little thinking.
Without going back to the beginning of this thread I got my first computor early in the year - like Jan or Feb.. Because I had no library books.

After a bit of exploring I found ecfans.com That stopped me a bit. After a while, I found enough intestional fortitude to begin posting at the Auelboard.

After a bit, I began to share what I was learning about myself and others. I began to share my healing and learnig there. Did a fair to good job. But lost my chace to speak there. only rarely now!!!

enuff now! :)gwenithugs

Just a checkin in needs assessment note. (pardon please sp/grammar)

Any BI needs a memory --- by pen/paper or companion.
Epecially if great damage or ??? .
I think playing the brain improvment games should be medical necessity.
I think doc notes and med records can be accessed. And commented about. It offers another window of give/take info.
Provides means to stay interested in living - surfing -

A question. What if we are experiencing so many different brain damages as means of preperation for some experience? Space travel? Wish to recall the writer and her books - _( the Ship that Sings)_ ? not sure of title.?

best, :)gwenithhugs :)

Ann McCaffrey



Brain & Brawn Ship Series
(also with Margaret Ball, Mercedes Lackey, S.M. Stirling, and Jody Lynn Nye)
The Ship Who Sang , Walker 1969
Partnership , with Margaret Ball, Baen (Reissue) 1992
The Ship Who Searched , with Mercedes Lackey, Baen (Reissue) 1992
The City Who Fought , with S.M. Stirling, Baen 1993
The Ship Who Won , with Jody Lynn Nye, Baen 1994
The Ship Avenged , with S.M. Stirling, Baen 1997

Brain and Brawn Compilations
Brain Ships , with Mercedes Lackey and Margaret Ball, Baen 2003
The Ship Who Saved the Worlds , with Jody Lynn Nye, Baen 2003
The City and the Ship , with S.M. Stirling, Baen 2004

Glad to see you found your way to www.tbihome.org (((Gwenith))). I FINALLY was approved for membership there, tried posting a note that you were having computer problems but it didn't get posted.


I've been trying to write Wileen on my cellphone with possible passwords and tricks to help fix the old computer, but my phone keeps messing up. So I'm logged on now and am finally going to get that email out!

I hope you're feeling better dear, I'll check back soon.
Love, Naomi

~`~
Good morning All!!
I'm ready to start. Doing coffee and news since 5:30am.

I Will try for more info on how important a computor is to me.
Actually - I'm dead without one.

I am not good at "touch" relationships now. My responses are too hard to do "on time".

More later. Thanks. :)gwenithugs

hiya Gwen,just got my computer back it crashed, good to see ya

greetigs all!!! Pat ain't it he- ll to be shut up?
Me too!!! Not sure wht happened. Trying to catch up

And stay on line!!!
Back soon as - - -

HI! Hello All!
So glad to be back! I'm not paying attention so very good!!

Thanks (((Wy))) Those books are good for this brain healing road. Hope all can get copies. Even before my own upfront and personl experiece, they made good reading and thinking.

Which causes this Question. Why now? Why so many brain injuries, diseases, differeces? Why are we learning so much more now? We've had the injuries since the beginning. Why do we need to know so much more now?

Glad Naomi. Hope you two can enjoy each other lots. I've more written in answer to your request. Not able to put it here - - yet - - - .!!:(

Pat!!! Glad you are ok again. It's horrid to be "shut up"!!!
I'll go back to the wilds when I leave here. Thank you unended for sharing the site. It helps a big lot.
love always, :)gwenith hugs

some more aser for Naomi. More soon.

  11/22/2009 13:32:07
~``~
Thanks ((((Naomi)))) !!! Wonder if I can ever repay - what you have done here --- just for me.
 
Wow~! It _is_ good to have some work to do Thanks. Will do the best I can. Thank You.

I have from you, Auel's_"Mammoth Hunters"_ and _"Plains of Passge"_. If I get the complete set - - -
I'll feel richer than any other. However, if others haven't had the chnce to read them yet - -. I most need
the rest of the story. That requires I stay well. She's 3 years older than I, and much more active. :).
I'm wishing her well and happy for a long time.

I like your call re "Follow. . . " It's great for me too. Helps tell our story. I'm hoping to learn more of you and your story soon. For now, all goes well - just explainning. It keeps me wondering - What's next?
~``~
Now then, more of the story.
I had my first look inside a nursing home December, 2004. I soon saw that my ignorance was kinder than reality. I tried to go with their ways. Things got worse and worser.

I soon saw that my igorance was good. I tried to go their ways. Things got worse. - and worser.

So I sat down in my room to wait. Got sicker. Got sent to the back corner to die. I cooled the room. Let the doc work, ejoyed a dozen room mates. All but one got better and enjoys. Maybe - the one enjoys too. We have no way to know yet. :)

I continue to cause as may changes as I can. This is consideed the least of the four nursing homes here. I've no knowledge of the others. I begin to say ok as folks get better with better training etc..

Lots of folks chaging. Here and everywhere. I like. :)

We are all getting ready to change as the world forces us to do. I hope it gets easier for all. I hope what we are doing makes life more wonder filled for many.

Do you suppose that we are being forced to learn more about our brains for future needs? It's world wide! It's the leastest to the mostest? WHy? There are usually good reasons. Wish I could remember that scifi author. Wy did!!! Seenher larest post here.
Thanks much. :) (( ))

You and I (I hope) will make a big difference for many who are living this experience. I hope we set an example for others to build on anywhere.

Computors are a certain necessity. For communication, learning, - - - . For all your reasons and more. I want the primary caregivers - family or friend to be met with one of those care filled tote sacks including the bedside computor for medical records, room traffic, brain care, building, pleasure and communication like ours.

So - I'm hoping that you have notes to share. - about all of the tools and practices which you have explored.
There's more than one way to be sure we each have a machine to use.
  ~`~

nuff for now :)gwenith hugs

was interrupted by younger daughter and new son in law. Greatest afternoon!!! So only a little mmore. :)
~`~

So I think it is most important that communication be facilitated as needed. Lots of good reading about how to do it. And we can always share some more.
What ever is close and handy makes a good start.
Don't forget any means of commuication including visual arts, music, touch, sign.
An opportunity for all ! ? ! ! ! ! !
This machine is most NECESSARY.

Partly, I think, because the population density and work place needs are more adjustable. We may become more able to see and share the whole world. Fun! What wonderful fun life to live!!! How marvelous that we now can talk with folks anyhere. I can be an example.

Dead. My life died within two years of surviving the brain surgery. 20 years later, here I sit with all of the worlds open to me. I just need to reach and grab!

At first, 1989 - 99, I tried to be quiet, invisable. But there was less of me and less of the world each day. So I walked away. The first three days, I walked about 30 miles down to the next little town. Wrecked my cart, took$10.00 donation. Slept, showered, rode 40 miles to a junction. Day by day I got closer to the state line.

Rented a basement room for a year. Got better room above ground. Disagreed with library. Got a machine and on line.

Ok for a while. Stroked out again. Had to get closer to family caregiving. Tried but couldn't. Ended up here in the bottom (of four) nursing homes in Casper, Wyo. If I got here 12-94, I've been here nearly 5 years. After the first year out in the heat, I got this room where I can see the mountain. I got mighty sick and then better.

On line again courtesy of another inmate, I caught up with others, and the EC@ folks. This "health care" business is slow. It's changed a good bit since I didn't die. :) And I'm anxious to see what more can happen here. Keep eyes open. :)

Needs! a bedside computor. For all - around contact with tbihome. Family, friends, caregivers.
1. for online records.
2. Room traffic record.
3. Commuication, contacts.
4. Search for good info re new body/brain.
5. Practice brain games.
6. Record experience - - - -

Commuication skills will change - no matter what. Speaking with folks you may never see! Learning! Laughing!

How long do I want to live on line? For as long as - - -

more soon :)gwenithugs