I was hit with PCOS when I was 19; I have gone through a tone of treatments nothing helps. I am miserable and in chronic pain all of the time. I need someone to talk to who can be a friend who knows what it is like, and can relate. Who wont say it is all in my head. My last vaginal sonogram showed so many cysts that the doctors first thought they were twisted and needed to remove my ovaries. I have on average 7 cysts pop a week the affects it has had on my body is horrible. I have so much pain that I can't sleep, eat, or enjoy anything I use to. I suffer from almost all of the symptoms including 6 month long periods and then not having it for 5 months and it starts all over. I have gained 110lbs because of medication and this stupid thing that is destroying my life. My husbanded and I have tried to get preg. For 7 years and can't. We have tried so many different things that we are tired of trying now. We both want 2 boys, we may just adopt its always an option but we want them natural and now I just can’t be put through it any more. I have not slept in 2 days because I had 6 cysts pop in 2 hours. I get seizure like cramping in all of my muscles, migraines daily, my chest size grew 3 cups sizes, mood swings, depression, I don't enjoy anything like I use to, I exercise daily I can't lose the weight, I have tried the diets, I have tried starvation, and nothing works. I am tired all the time, I have dry mouth, pain all of the time and I can't take it any more. I get so sick with my cysts that I end up in the hospital 2 a year. I don’t have insurance right now (it doesn’t start up again until September) I need help. Every doctor I have gone to but one has been a fruitcake and the good doctor moved out of state. I get told stupid things like "you don't look sick," "it can't be that painful", "you can walk it off", "we don't know what is wrong” I am paying a 3,000 dollar bill to a hospital who drugged me when I had so many cyst pop at one time that I blacked out, I could not move with out tossing my cookies and could not move on my own. The only supportive person I have in my life is my husband everyone else things I am playing a "game" like I enjoy this or something. I can’t do this anymore. It hurts all the time; I have lost so much of myself to this that I just can’t do it anymore. I just can’t, I am sorry I am bitter. I love my life, my job is great and my husband is even better. I just can't take this physical pain anymore. I feel like my soul is being tortured like I did something and now I am being punished. I need help... anyone... please. Anyway, I guess that is enough from me, I am sure you have all heard it before… and I hate to whine… I hate begging for help… I hate feeling like this!

Hi Darcie.
This is a very real and painful situation. I have had it since I was 16. I am now 47. Please write to me.. and we can share... There are many Dr.'s who know so little.. but there are also very good ones... jusducky56@yahoo.com

I am a 20 year old college student and I have just been diagnosed. I am currently taking med's for depression and wondering if anyone knows if this makes your pcos worse?
thanks

In the past I have done both the Atkin's diet which was very unpleasant and the zone; I was wondering if anyone knows if I have to go on a strict Atkin's type diet to feel better, or if I can heal on a diet such as the Zone?

Depression does not help because the cyst will be more active with stress. There is a lot of information on the web for diet. Most of it comes down to a diabetic diet to control your blood sugars. Some doctors believe that PCOS is one cause for diabetes in women. Darcie Valdez
 





>From: QuickTopic daily digest
>To: darcvaldez@hotmail.com
>Subject: Women and Writing
>Date: 22 Oct 2003 04:09:52 -0000
>

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< replied-to message removed by QT >

I am in my mid thirties and having been dealing with this for awhile. This is directed to a few of the messages I read. Let's face it, treatment of PCOS is currently a hit or miss issue with doctors, because they only have parts of the puzzle figured out. PCOS is different for each women. There are a list of symptoms that doctors agree we all may have, and a list that we as suffers know we have that doctors just haven't gotten around to agreeing with us yet. Depression and axiety are one of the later ones and are usually are associated with your mood swings. And since we as PCOS sufferers know, have out of whack hormones that can affect us differently each month, doctors aren't getting that it isn't a permenant situation. I was diagnosed with depression at one time and was treated with an anti-depressant that literally had me so hyper I was bouncing off the walls, and while I felt great, that was not a solution. You just can't live on 2 hours sleep a night. I stayed on that medication for 3 months. When I came off of it, miraculously... I no longer was suffering from those symptoms. That doesn't mean I was cured, what it does mean is that since then I have noticed a 'cycle'. A pattern during my worst mood swings that 'sets' off the depression and anxiety episodes. My suggestion is if you are not suicidal in nature and can handle a short term depression, you should seek a milder form of assistance such as an over the counter herb named St. John's Wort. It is a natural mood elevator that won't give you the side effects of some of the more potent drugs. I would also reccomend in conjunction with that to take a B-complex vitamin.
Women who suffer on the one side of the spectrum who do not have a 'painful' period may be able to relieve minor symptoms using natural remedies. There is a web site with more information on that: http://pcos.freeservers.com/natural.html
For women who suffer an extremely 'painful' symptoms such as Darcie... I would suggest a look at the overall situation. Your pain is caused by cysts that doctors say are best treated with drugs. I don't believe that. There are several medical procedures that they do on a regular basis is the United Kingdom (England) that bring a great deal of relief to chronic sufferers. That information can be found at www.womens-health.co.uk/
I would suggest Laparoscopic ovarian diathermy to increase your sensitivity to the fertility drug clomiphene. The treatment of pain is and can be manageable, but alas it, like pcos, is totally individual. Don't give up hope. I have met women who suffer from PCOS who have tried for years, and succeeded in having children. You will too...

I hate my husband. I came home after being gone for two days on a business trip, I am tired, it was stressful - he doesn't know jackshit about our daughter's homework that he was supposedely helping with, he lost her book she brought home from school that she is suposed to return, and when I question him about these things he says I am being a bitch. Sorry I just wanted to understand what the homework assignment was and where the book is - if he understood the homework assignment and knew where the book is, he should not have any problem. He then says sex with me is not a big deal.

My job sucks. I am an engineer who does the fucking budget and powerpoint presentations all the time. Fuck that. And my boss thinks I can read his stupid mind about his stupid presentation. Fuck him.

Fuck my marriage and my job. I hate them both.

Wow, that is a lot to deal with. With our emotions out of balance and a stressful home life makes work, and everything else so horrible. We really need people to understand and corporative specially parents. Sounds like you have been on a team by yourself at work and home. Well I know it isn't much comfort but I don't mind chatting to be a support when you need one. PCOS Sucks_Darcie
>From: QuickTopic daily digest

>To: darcvaldez@hotmail.com
>Subject: Women and Writing
>Date: 12 Nov 2003 05:13:30 -0000
>

  Concerned that messages may bounce because your Hotmail account is over limit? Get Hotmail Extra Storage! < replied-to message removed by QT >

Thank you for your support and feed back. I just thought I would give everyone an update. I went in for three test, 1 vaginal sonogram to look at my ovaries that showed they look like "Swiss Cheese" according to my doctor (isn't that nice bed side manners) 2 blood work, my cyst are popping and building liquid on the outer layer causing these toxins to pollute my pancreas and kidneys. (Just one of the many reasons I am in pain 24-7) and the 3rd they took a small camera inside to look closer at the ovaries and did a biopsy to see and I will be having surgery soon the date is not set yet but soon to have them removed. I have to go weekly for blood work and if my levels of something I don't understand and can't get my doctor to explain better drop then I will go in for emergency surgery. He said this happens to 1 out of 20 women with this. Though as we all know they don't know anything but I don't have many other options right now. I have now had 3 different doctors confirm... I guess I am just tired of the denial. Anyway, I am having both ovaries removed due to all of these complications on the 12th of Feb. unless my doctor gets blood work results back between now and then I will have emergency surgery. Thank you for your help and support I appreciate it.
 



Darcie Valdez




>From: QuickTopic daily digest
>To: darcvaldez@hotmail.com
>Subject: Women and Writing
>Date: 8 Nov 2003 05:08:49 -0000
>

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< replied-to message removed by QT >

Thank you for your support and feed back. I just thought I would give everyone an update. I went in for three test, 1 vaginal sonogram to look at my ovaries that showed they look like "Swiss Cheese" according to my doctor (isn't that nice bed side manners) 2 blood work, my cyst are popping and building liquid on the outer layer causing these toxins to pollute my pancreas and kidneys. (Just one of the many reasons I am in pain 24-7) and the 3rd they took a small camera inside to look closer at the ovaries and did a biopsy to see and I will be having surgery soon the date is not set yet but soon to have them removed. I have to go weekly for blood work and if my levels of something I don't understand and can't get my doctor to explain better drop then I will go in for emergency surgery. He said this happens to 1 out of 20 women with this. Though as we all know they don't know anything but I don't have many other options right now. I have now had 3 different doctors confirm... I guess I am just tired of the denial. Anyway, I am having both ovaries removed due to all of these complications on the 12th of Feb. unless my doctor gets blood work results back between now and then I will have emergency surgery. Thank you for your help and support I appreciate it.

Darcie Valdez




>From: QuickTopic daily digest
>To: darcvaldez@hotmail.com
>Subject: Women and Writing
>Date: 8 Nov 2003 05:08:49 -0000
>

  Is your computer infected with a virus? Find out with a FREE computer virus scan from McAfee. Take the FreeScan now! < replied-to message removed by QT >

windblwn@bellsouth.net

Darcie, I hope the surgery goes well. Not knowing can really get to you as much as PCOS can.

Thank you, it has been a struggle this last couple of weeks with the unknown and the frustration of not having children now but, my husband and I are dealing with this and have faith that everything will be ok. Darcie Valdez





>From: QuickTopic daily digest
>To: darcvaldez@hotmail.com
>Subject: Women and Writing
>Date: 18 Nov 2003 05:36:47 -0000
>

  Get movie theme backgrounds from Elf and Lord of the Rings to jazz up your MSN Messenger. Download it free now! < replied-to message removed by QT >

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